Double Duty: Caring for Children and the Elderly : Hearing Before the Select Committee on Children, Youth, and Families, House of Representatives, One Hundredth Congress, Second Session, Hearing Held in Washington, DC, May 3, 1988, Part 95

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Page 45 - First of all, I would like to ask unanimous consent to enter a statement by our colleague, Congressman Rahall, expressing his words of welcome to Dr.
Page 51 - More often than not, the average fanily is unaware of services available in the community and how to access them. Families need information on: how and where to get help, what the implications of a diagnosis are, and costs and burdens they are likely to face. Resource information is needed not only at diagnosis, but throughout the often times long years of caregiving.
Page 131 - However, the long-term economic effects are even more devastating. Frequent breaks in employment to provide family care which result in job loss make it difficult for a woman of any age to earn or vest in adequate pension benefits and Social Security income. This problem is compounded by the fact that mid-life women can face both sex and age discrimination when looking for a new job. Time out of the work-force to care for family members is one factor in the gloomy retirement income picture for many...
Page 55 - Infonnation about available service is a primary need for caregivers. The OTA survey found that many families need help finding services and negotiating the system to obtain needed services. Families also need information on a variety of topics: how and where to get help, what the implications of a diagnosis of dementia arc, what the genetic risks are, what costs and burdens they will face and should plan for (39,43).
Page 51 - Services should also be developed to conserve family resources. Early intervention is crucial to avoid having a family exhaust all its resources to provide long-term care. Legal and financial information and advice should be provided by knowledgeable attorneys to help families plan for long-term care and resolve complex legal issues.
Page 50 - Personality changes, bizarre behaviors and the years of constant care required hit hard on the family. Caregivers frequently carry the burden alone and come to a service agency only after great pain and hardship. As one adult daughter, caring for her mother...
Page 56 - With the help of the Fellowship Program of the Gerontological Society of America, funded by the Administration on Aging, FSP conducted a study of 284 Bay Area caregivers. In the interest of brevity a summary of the study findings has been given to Committee members, and additional information can be provided upon request. I would, however like to highlight sane of the more striking findings.
Page 55 - In terns of helping families and in providing a lower cost alternative to institutional placement. In 1987, the average monthly state cost per family client was $221.
Page 131 - ... employment to provide family care which result in job loss make it difficult for a woman of any age to earn or vest in adequate pension benefits and Social Security income. This problem is compounded by the fact that mid-life women can face both sex and age discrimination when looking for a new job. Time out of the work-force to care for family members is one factor in the gloomy retirement income picture for many of today's older women. Only 20 percent of women over 65 receive private or public...
Page 53 - Individuals with dementing disorders are among the most difficult to care for. Personality changes; bizarre behaviors, and the years of constant care required hit hard on the family.

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