Health Care and Information Ethics: Protecting Fundamental Human RightsAudrey R. Chapman This volume brings together experts in the fields of information ethics and health care to explore the impactions of these challenges as they impact what kind of care will be available, who will receive health care, and how the care is monitored. |
Contents
The Human Rights Framework | 29 |
Moving Toward Universality Monitoring Underserved and Excluded Populations | 53 |
Issues and Methodologies for Monitoring Universality | 55 |
Monitoring Welfare and Womens Health | 64 |
Improving Health Data Among American Indians and Alaska Natives An Approach from the Pacific Northwest | 86 |
Drawing Samples from Hidden Underserved and Vulnerable Populations Methods Applications and Ethical Issues | 112 |
Using StateLevel Hospital Discharge Data Bases A Source of RaceEthnicity Data to Monitor Minority and Special Populations | 135 |
Designing an Information System to Monitor Population Access to Care Health and Health Care Use | 158 |
Linking Health Records Human Rights Concerns | 250 |
Guidelines and Mechanisms for Protecting Privacy in Medical Data Used for Research | 277 |
Data for Health Privacy and Access Standards for a Health Care Information Infrastructure | 307 |
Medical Data Protection and Privacy in the United States Theory and Reality | 349 |
Privacy of Health Care Data What Does the Public Know? How Much Do They Care? | 391 |
Guidelines and Mechanisms for Regulating Access to Data Private Health Insurance Issues | 417 |
| 447 | |
Epilogue | 465 |
Supporting the Delivery of Preventive Services Through Information Systems A Manitoba Example | 189 |
Issues Regarding Appropriate Uses of Outcomes Data in Monitoring Universality and Nondiscrimination in Access to Health Care | 214 |
Privacy Nondiscrimination and Consent | 237 |
Introduction and Overview Privacy Nondiscrimination and Consent | 239 |
| 470 | |
Contributing Authors | 472 |
Index | 475 |
Common terms and phrases
access to health administrative data AFDC agencies AI/AN American areas benefits census cervical cancer clinical codes Committee computerized confidentiality costs coverage data sets data subjects databases disclosure disease electronic employers Epidemiology ethical Evaluation example federal genetic groups guidelines health care information health care system health data health information system health insurance health records health services health status human rights immunization implemented Indian individual information privacy informed consent Institute of Medicine issues Jabine Journal legislation linked Manitoba Medicaid medical data medical information medical privacy medical records Medicare monitoring mortality National nondiscrimination Office of Technology outcomes patient records physician potential privacy protection programs Protecting Privacy public health rates record linkage reform responsibility risk sampling Smart Cards Social Security number specific standards statistical surveys Technology Assessment tion treatment tribes University University of Manitoba vaccine vital records Washington welfare Winnipeg
Popular passages
Page 10 - No one shall be subjected to arbitrary interference with his privacy, family, home or correspondence, nor to attacks upon his honour and reputation. Everyone has the right to the protection of the law against such interference or attacks.
Page 11 - Everyone is entitled to all the rights and freedoms set forth in this Declaration, without distinction of any kind, such as race, color, sex, language, religion, political or other opinion, national or social origin, property, birth or other status.
Page 10 - International Covenant on Civil and Political Rights Adopted and opened for signature, ratification and accession by General Assembly resolution 2200 A (XXI) of 16 December 1966 ENTRY INTO FORCE: 23 MARCH 1976, IN ACCORDANCE WITH ARTICLE 49...