The Willowbrook Wars: Bringing the Mentally Disabled Into the Community

Front Cover
Transaction Publishers - Law - 417 pages

The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years.

From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions,

The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.

 

Selected pages

Contents

Going into the Field
1
MAKING THE CASE
13
Welcome to Willowbrook
15
The Litigator as Reformer
45
A Keen Intellect and a Love of Man
66
The Numbers Game
90
Uninformed Consent
106
THE BIOGRAPHY OF A CONSENT DECREE
125
ALL TOGETHER NOW
255
Fighting the Plague
257
COMING APART
297
Politics Politics Politics
299
Willowbrook Revisited
322
Leaving the Field
353
Afterword to the AldineTransaction Edition
367
Acknowledgments
379

Ready Fire Aim
127
Who Cares?
151
Moving Minds
177
Eyes On
200
Life Chances
220
Sources and Methods
383
Notes
391
Index
411
Copyright

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About the author

Sheila M. Rothman is professor of public health in the Division of Sociomedical Sciences at Columbia University.

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