Disability, the family, and society: listening to mothers
Circumstances dictate that many mothers play a central role in the upbringing of their disabled children. Mothers and children often find themselves involved in an unusually intimate and protracted relationship. This book explores mothers' perspectives about the ways that they find themselves acting as mediators between their children and a world that can be hostile to their interests. It takes as its starting point a study in which mothers from diverse backgrounds detail the ways in which they attempt to represent their children to the world, and the world to their children in both formal and informal interactions. They describe challenging discussions with children and other family members as well as battles and negotiations elsewhere. Their particular experiences and perspectives are linked to wider research and theory on motherhood and caring, the life patterns of disabled children and their families, and the discrimination faced by disabled children and adults.
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an overview of policy and research
Twelve West Midlands mothers
The things that mothers do
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Abberley accounts activities Angela aphasia approach argued Audit Commission Baldwin and Carlisle Beresford 1995 carers caring challenge chil Children Act 1989 children and adults circumstances concerned context daugh deal Deborah described DHSS difficult disability studies disabled child disabled children disabled people's disabled sons discussion dominant Down's syndrome dren etal example experience of disabled face Fazialt Jan feel felt feminism feminist frequently gender Glendinning 1983 Handicapped households impact impairment important informal interests involved issues literature lives London mediation Morris motherhood and mothering mothers of disabled needs Open University oppression parents particular perspectives position practice problems professionals psychoanalysis regarded relation relationship responsibility restricted role seen service providers significant Sloper and Turner social model Social Services Inspectorate sometimes sons and daughters spina bifida suggests talk theoretical theory things understanding upbringing West Midlands mothers writers young