Moonrise: One Family, Genetic Identity, and Muscular Dystrophy

Front Cover
Macmillan, Mar 26, 2003 - Biography & Autobiography - 256 pages
4 Reviews
Moonrise is Penny Wolfson’s first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of “wrongness,” takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life.

As she traces her son’s development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.
  

What people are saying - Write a review

Review: Moonrise: One Family, Genetic Identity, and Muscular Dystrophy

User Review  - Maria Vargason - Goodreads

This book was super hard to read! It wasn't that it was a "hard" book--it was the content. The subject matter is sooooo close to home that it was a little hard to bear. If you know anyone that has a child with muscular dystrophy this is the book for them to read. Read full review

Review: Moonrise: One Family, Genetic Identity, and Muscular Dystrophy

User Review  - Goodreads

This book was super hard to read! It wasn't that it was a "hard" book--it was the content. The subject matter is sooooo close to home that it was a little hard to bear. If you know anyone that has a child with muscular dystrophy this is the book for them to read. Read full review

Contents

Backdrop
1
Double Exposure
17
Family Album
43
Negative Capability
65
Moving Pictures
91
Camera Obscura
121
Photosynthesis
147
Depth of Field
175
Slide Show
191
Moonrise
207
Copyright

Common terms and phrases

Popular passages

Page 237 - Characterization of dystrophin in muscle-biopsy specimens from patients with Duchenne's or Becker's muscular dystrophy.

About the author (2003)

Penny Wolfson won a National Magazine Award for the essay on which Moonrise was based. Her work has appeared in The New York Times, The Atlantic Monthly, Exceptional Parent, and Good Housekeeping, and is included in The Best American Essays 2002. She teaches at Sarah Lawrence College and lives with her family in Dobbs Ferry, New York.

Bibliographic information