Porphyria: The Woman Who Has "The Vampire Disease" - A True Story
Porphyria is the astonishing true story of a young woman whose physical appearance has led many people to shun her. She must endure days when her complexion turns eerily waxy, visual distortions, abrupt changes of personality and an inability to stand sunlight. It tells of her courageous struggle to live a normal life and find lasting love as well as her frustrating search to find treatment for a disease that one reporter flatly states "not enough people are dying of" to matter. Faced with her worst fear, that her own daughter may have porphyria, Tammy mounts a heroic battle, becoming a national crusader to find the cure for the rare disease. Then the illness becomes national news when the strange malady, afflicting Vietnam and Gulf War veterans, is announced by some noted researchers to be "environmental or intoxicant porphyria."
19 pages matching someone in this book
Results 1-3 of 19
What people are saying - Write a review
Agent Orange Alpena arms asked attack baby began body chloracne Clinic dioxin disease doctor door eyes face fear felt going Grandma Gulf Gulf War Syndrome hand happening head heart herbicides Hodgkin's disease hope hospital hurt illness inside Janeene keep kidney stone kind knew looked Lori Lori's marching music Mayo Clinic Mike miles minutes Mommy morning mother multiple sclerosis nausea never night nodded nurse okay pain Persian Gulf Peter Petoskey phyria porphyria porphyria cutanea tarda Rachel Reuben Sharon shook sick skin sleep smile soft tissue sarcoma someone stared Stewart stomach stop sure symptoms tachycardia talk Tammy Evans tears tell Thank thing thought told took Trek for Truth trying turned veterans voice wait walk watched What's whispered words worry