Porphyria: The Woman Who Has "The Vampire Disease" - A True Story

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New Horizon Press Publishers, Incorporated, 1997 - Medical - 304 pages
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Porphyria is the astonishing true story of a young woman whose physical appearance has led many people to shun her. She must endure days when her complexion turns eerily waxy, visual distortions, abrupt changes of personality and an inability to stand sunlight. It tells of her courageous struggle to live a normal life and find lasting love as well as her frustrating search to find treatment for a disease that one reporter flatly states "not enough people are dying of" to matter. Faced with her worst fear, that her own daughter may have porphyria, Tammy mounts a heroic battle, becoming a national crusader to find the cure for the rare disease. Then the illness becomes national news when the strange malady, afflicting Vietnam and Gulf War veterans, is announced by some noted researchers to be "environmental or intoxicant porphyria."

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User Review  - Amber - Goodreads

Tammy was my next door neighbor while I were growen ups. Read full review

Contents

A Glimpse of Darkness
1
Hungry for Love
7
Trapped
19
Copyright

26 other sections not shown

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About the author (1997)

Tammy Evans is the executive director of The Porphyria Education and Awareness Foundation. In this capacity, she lectures to a wide audience, including Gulf War veterans' groups, all over the United States.

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