When Treatment Fails: How Medicine Cares for Dying Children
Medical care of the terminally ill is one of the most emotionally fraught and controversial issues before the public today. As medicine advances and technologies develop, end-of-life care becomes more individualized and uncertain, guided less by science and more by values and beliefs. The crux of the controversy is when to withhold or withdraw curative treatments--when is enough, enough?
Political debates rage about when treatment is no longer effective; difficult cases are contested in courts; and the media devour the most sensational aspects of end-of-life care. In all this excitement and controversy, what is sadly overlooked is the extreme pressure that care of the terminally ill puts on medical staff as they deal with patients and their families and make life-or-death decisions. That pressure--the psychological strain and continuing uncertainties--is magnified when the patients are children.
David Bearison looks at this controversial issue from the perspective of the medical staff caring for dying children. Not just doctors, but nurses and counselors as well. By capturing their stories--as no other book has, Bearison is able to move beyond broad, abstract ideas about end-of-life care to convey the situated contexts of such care, including the complications, disagreements, frustrations, confusions, and unexpected setbacks.
In addition to a discussion of questions surrounding whether to withhold or withdraw curative treatments, When Treatment Fails explores the crucial concerns of those medical practitioners who care for dying children: education and training, relation with one another, communicating with patients and families, and finally, coping and moving on. Ultimately, the threads connecting these themes are the great costs and rewards of this difficult work, and the lessons that can be drawn from the nitty-gritty experiences of medical practitioners who struggle to find the balance between trying to defeat death and trying to provide comfort.
What people are saying - Write a review
We haven't found any reviews in the usual places.
able aggressive angry anymore asked aunt baby better blood bone marrow transplant breathing cancer chance chemo chemotherapy child Christianna clinical comfortable CT scan curative cure deal death and dying decisions Devon diagnosis didnít died difficult disease doctor dying children emotional everything father feel felt getting give going Hadassah Medical Center happen hard hear heart hope hospice care hospital intubated involved issues kind knew little bit liver look lungs medical staff medicine metastases mother narratives neuroblastoma never night nurses okay oncologist oncology pain pain management palliative palliative care parents patient pediatric end-of-life pediatricians peripeteia physicians platelets radiotherapy residents respiratory respiratory failure sense sick situation social worker someone started Story suffering surgery talk tell therapy there's things thought tion told treatment tumor understand ventilator what's Wiskott-Aldrich syndrome
Page 278 - Permission means the agreement of parent(s) or guardian to the participation of their child or ward in research. (d) Parent means a child's biological or adoptive parent. (e) Guardian...