Crucial Decisions at the Beginning of Life: Parents' Experiences of Treatment Withdrawal from InfantsBMA Medical Book Of The Year. This is a unique and valuable work, which traces the experiences of over 100 parents who have lived through the loss of a baby. It follows them from pregnancy through to13 months after the death. Based on rigorous scientific research it describes their feelings when crucial decisions are made on behalf of their child, and examines their capacity to take responsibility for such decisions. By analysing those factors which help or hinder them, the book provides guidance to health professionals on how the services they offer may be improved. Neonatologists, paediatricians, midwives and neonatal nurses will find it an essential and enlightening read. Primary care clinicians, intensive care staff and hospital chaplains will discover insights which help them to support a wider group of patients and relatives. 'This is an important book. It recounts the experiences of families whose babies died or were involved in the withdrawal of medical treatment. What the parents have to say is very revealing and demonstrates how easy it is to make mistakes in their care. Their comments are instructive and will help us in the care of other families. We must aim to give faultless care, but need to recognise that we often fall short of our aim. The parents who recounted the events in these interviews are excellent teachers in showing us where it is easy to go wrong' From the Foreword by David Harvey. |
Contents
Parental grief 556789 | 5 |
The study method | 11 |
The respondent families | 27 |
Copyright | |
11 other sections not shown
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Crucial Decisions at the Beginning of Life: Parents' Experiences of ... Hazel McHaffie Limited preview - 2018 |
Common terms and phrases
asked autopsy baby with asphyxia baby with cardiac baby with congenital baby's birth brain damage Caesarean Section cardiac anomaly child cited commented congenital anomalies consultant coping couple death decided decision died discussion distress doctors dying process emotions ents experience fact factors families father feel follow-up funeral given going grief grieving happened happy hospital hurt important interview involved knew labour listening lives look loss midwife mother of baby mother of preterm multiple births neonatal neonatal nurse neonatologist NICU number of parents nurses obstetrician paediatrician pain parents felt parents of baby parents of preterm partner person pregnancy preterm baby preterm twins problems reassurance recognised regretted relationships remember reported responsibility sadness sense sensitive sets of parents small number staff Stillbirth stop treatment surviving talk tell things thought tion told tragedy upset weeks withdrawal wrong