Amyotrophic Lateral Sclerosis: A Guide for Patients and Families

Front Cover
Hiroshi Mitsumoto, Theodore L. Munsat
Demos, 2001 - Health & Fitness - 451 pages
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Approximately 10,000 individuals are diagnosed with Amyotrophic Lateral Sclerosis (ALS) each year. Although there have been major advances in understanding the underlying pathology of ALS, for most patients the clinical outcome is fatal. However, a great deal can be done to treat the symptoms of ALS, to improve the patient's quality of life and to help caregivers and families to cope with the disease.

This new and extensively revised guide covers every aspect of living with ALS. There are discussions of:
-- Classifications and clinical features of the disease
-- Diagnosis
-- Patient care
-- Therapeutic trials
-- Unorthodox treatments
-- Speech problems
-- Physical therapy
-- Nutrition
-- Environmental adaptations
-- Ventilatory care
-- Nursing care
-- Long-term care
-- Financial resources
-- Role of support groups

Rounding out this comprehensive review are sections that deal with hospice care, life support systems, legal, ethical, psychosocial and spiritual aspects of dealing with the disease, and the role of the National Voluntary Health Agency in dealing with all aspects of the disease.

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About the author (2001)

Wesley J. Howe Professor of Neurology, Columbia University Medical Center and Director, Eleanor and Lou Gehrig MDA/ALS Research Center and Neuromuscular Division, Neurological Institute of New York

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