Cystic Fibrosis: The Ultimate Teen GuideThe day-to-day dealings of life as a cystic fibrosis patient are described through a series of flashbacks to a time when the author was an 18-year-old volunteer at cystic fibrosis overnight camp. From diagnosis to death, this book leaves no aspect of CF untold as it includes a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing the disease; coverage of the arduous daily therapies involved in maintaining the life of a person with cystic fibrosis; and, now that people who have CF are living longer because of available therapies, the new challenges of dealing with CF-related diabetes as well as making decisions regarding lung transplants are all covered. |
Contents
Medical Disclaimer | ix |
Acknowledgments | xi |
Introduction | xiii |
Cystic Fibrosis The Facts | 1 |
A Genetic Disorder | 21 |
A Diagnosis | 35 |
A Daily Challenge | 51 |
Good Days and Bad Days | 87 |
Other Compilations | 125 |
A Second Chance The Lung Transplant | 139 |
In the End | 175 |
Just over the Horizon | 201 |
Afterword | 229 |
The Fabulous List of CF Resources | 231 |
Glossary | 237 |
Living and Laughing | 99 |
Common terms and phrases
airway clearance Albuterol Amy's Angela antibiotics baby blood born with cystic breathing called carrier causes cepacia CF camp CFRD CFTR chest therapy child Children's Memorial Children's Memorial Hospital cough cure Cystic Fibrosis Foundation damage diabetes diagnosed DiBiase died disease DNAse doctor double lung transplant drug e-mail enzymes feel friends g-tube gene genetic girl Goryl hard Hawk-Manus healthy hemoptysis hospital infection inhaled insulin Jenny kids Kimberlee knew live liver look Lucci lung transplant Maggie MARGARET meconium ileus medications Melissa Mike Mike DiBiase MRSA mucus mutation nebulizer never Norma Kennedy Plourde's normal oxygen pancreas parents person PICC line pills Pseudomonas aeruginosa respiratory therapist Sheehan sick sister someone sometimes surgery sweat test Tai Kwon talk teenager tell things thought told treatments tube Ultimate Teen Guide Vest Vosloo week