Down's Syndrome: Children Growing Up

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Cambridge University Press, Nov 24, 1995 - Medical - 202 pages
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The most common, most easily recognized and probably the most researched single condition causing learning disability is Down's syndrome. Dr. Carr has followed the lives of a population-based cohort of Down's syndrome subjects from birth to early adulthood. This volume, based on extensive interviews and questionnaires that focus on fundamental issues of development and upbringing, details particularly the development of study groups between the ages 11 and 21 with a longitudinal perspective reference to earlier years as appropriate. Dr. Carr investigates a wide range of factors from behavior, discipline and independence to effects on the family and the provision of help from services. The collection of this unique data spanning the first twenty-one years of life enables Dr. Carr to offer discussion and advice that will be of international relevance and an invaluable reference for clinical psychologists, social workers and all others concerned with the care, health and well-being of Down's syndrome individuals and their families.
  

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Contents

Downs syndrome implications of the diagnosis
1
Incidence prevalence and life expectancy
2
Characteristics
4
Personality
6
Health
8
The effects of ageing and Alzheimers disease
9
Effect on families
11
Populations and procedures
15
Interests and activities
93
Outings
96
Holidays
98
Daytime occupation
99
Friendships
102
Sex education and interest
108
Longitudinal aspects
110
Discussion
115

Changes in the populations
16
Living situation
18
Testing procedures
19
The nature of the study
20
Symbols and shorthand
21
The developmental study
23
Intellectual achievement
31
Group differences in ability and achievement
36
Discussion
37
Selfcare and independence
44
Selfhelp skills
47
Coping with puberty
51
Correlations
53
Discussion
55
Behaviour and discipline
59
Longitudinal aspects
69
Discussion
76
Focusing on the individual
84
Staying at home and going out
90
Effect on the families
119
Effect on brothers and sisters
120
Effect on the mothers
127
Longitudinal aspects
137
Discussion
144
Help from services
150
Services at age 21
154
Allowances at age 21
160
Discussion
162
Summary and conclusions
166
Behaviour
168
Living and life styles
170
The effect on the families
171
The role of services
174
Looking to the future
176
References
181
Index
197
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