A Carer's Odyssey
In the first part of A Carer's Odyssey, Anna Chan describes how she and her husband Jeff were devastated 16 years ago by the diagnosis of their daughter Emma's severe neurological disorder, called Rett Syndrome. They tried everything with little success, including a course of cranial acupuncture in China. The lack of understanding and empathy of disabled people in China is saddening, while the way in which extended families give their support is inspirational. Part two of the book tells the story of how Jeff became mentally ill and how Anna had to cope with an extra burden. It details her battle to get Jeff's illness recognised and treated, and her struggle to understand Jeff and help him recover. Part three develops the positive lessons learnt from both Anna's professional work as a Carers' Support Worker and Carer Lead for an NHS trust, and from some heart-warming and inspirational accounts of great achievers who have suffered or do suffer from physical or psychological disabilities.
What people are saying - Write a review
We haven't found any reviews in the usual places.
able acupuncture Amoxicillin asked autism baby became behaviour bipolar disorder birthday carers caring chapter childminder China Chinese Christmas colleagues communication cope daughter decided depression diagnosis difficult disabled children doctor Down’s Syndrome Emma’s condition Evelyn Glennie experience felt friends gave girls grandmother GuangZhou hands holiday Hong Kong hospital husband improve Jack Ashley Jeff Jeff’s Joan Kate knew look after Emma managed Margaret Maureen MECP2 medication mental illness months mother mths needed neighbours NHS Trust normal nurse nursery organised paediatrician parents patients play problems professionals respite respite care RSAUK Sarah schizophrenia sister skills Smartboard smile someone Stacey started stay stop story Stratford suffering symptoms Syndrome Association talk teachers therapies things thought throat throat cancer told took Emma treatment tried walk wanted weekend weeks worry