A Constant Burden: The Reconstitution of Family Life
Thirty years after it was first published, this book contains the same seminal study of families with a disabled child, based on an analysis of interviews with parents about the effects of their child's disability on their family life. The revised edition contains a new introduction which puts the study in its intellectual context.
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acceptance actions activities agencies agents analysis appear appropriate argues attempt baby chapter child-rearing child's behaviour child's condition child's disability clinic coeliac disease commonsense competence conception concerned constitute constructed course defined definitions deviance diabetes diagnosis disabled child discrepancies discuss doctors encounters ethnomethodology everyday evidence examine example expected experience explanation expressed fact given handicapped health visitor Hence hospital husband ibid identified ideology Ileostomy imputed individual interaction interpretations interview knowledge legitimate less manage marriage meaning mental subnormality methods mongol child mother Multiple Sclerosis normal children normal parenthood observed official morality onset parents say particular person phenobarbitone phenomena phenomenology possible present problems processes prognosis psychiatry question regarded relationship relevant reported responses seen self-conception sense similarly situation social workers society sociology specific spina bifida statements stigmatization strategies suffering theodicies theories thought treat typical voluntary associations worry