A Delicate Balance: Living Successfully with Chronic Illness

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Da Capo Press, 2000 - Health & Fitness - 289 pages
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Chronic physical illnesses-such as lupus, Sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, inflammatory bowel disorders, Lyme disease, interstitial cystitis, multiple sclerosis-take their toll on every aspect of a person's life. Though millions of people manage to cook, care for children, or work despite their disability, they do so with fatigue, pain, and the grinding uncertainty of living with chronic illness.A thoughtful exploration of this experience, A Delicate Balance provides both up-to-date practical advice and inspiration for the millions of Americans who struggle daily against chronic illness. From locating a suitable health-care provider and making sense of the powerful emotions that accompany chronic illness, to seeking accommodations under the Americans with Disabilities Act and applying for Social Security Disability Insurance, A Delicate Balance is informed by in-depth, personal interviews with patients, care providers, and family members. The result is a compassionate and immensely hopeful book for anyone touched by a chronic disease.
 

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A delicate balance: living successfully with chronic illness

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Many people suffer from chronic illnesses such as chronic fatigue syndrome, fibromyalgia, and Crohn's disease, and though their suffering is great, it is often invisible to others. Wells, a journalist ... Read full review

Contents

FOREWORD
viii
BEGINNING THE JOURNEY The Search for a Diagnosis
4
A STUMBLING BLOCK Is My Illness Really All in My Head?
28
FINDING A HEALTH CARE PARTNER
48
NOW WHAT? The Search for Treatments
72
NOTES
230
INDIVIDUALS PROFILED
254
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About the author (2000)

Susan Milstrey Wells has been a professional writer and editor for more than twenty years. She is a member of the Sjogren's Syndrome Foundation Board of Directors and lives in Halfmoon, New York.

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