A Guide to selected national genetic voluntary organizations

Front Cover
National Center for Education in Maternal and Child Health, 1989 - Medical - 223 pages
0 Reviews
"Directory of mutual support groups concerned with the medical and psychosocial impacts of genetic disorders and birth defects on affected individuals and families." Arranged topically by kinds of disorders, e.g., skin disorders or neurologic. Entries give identifying and descriptive information. Subject, title indexes.

What people are saying - Write a review

We haven't found any reviews in the usual places.

Contents

General
11
National Foundation for Jewish Genetic Diseases Inc
17
Alexander Graham Bell Association for the Deaf AGBAD
23
Familial Polyposis Registry
29
Cardiovascular
35
Association for Children with Down Syndrome Inc ACDS
41
National Down Syndrome Society NDSS
47
Table
53
Juvenile Diabetes Foundation International
121
National Mucopolysaccaridosis MPS Society Inc
127
Wilsons Disease Association
133
Table
135
Osteogenesis ImperfectaNational Capital Area Inc OINCA
141
Acoustic Neuroma Association
147
Friedrichs Ataxia Group in America Inc FAGA
153
National Neurofibromatosis Foundation Inc
159

American deft Palate AssociationThe Cleft Palate Foundation
59
Association for Children and Adults with Learning Disabilities
65
Orton Dyslexia Society
71
Gastrointestinal
77
Gluten Intolerance Group of North America GIG
83
Hemochromatosis Research Foundation Inc
89
Immunologic
97
Kidney
103
Depression and Related Affective Disorders Association
109
Association for Glycogen Storage Diseases
115
Reflex Sympathetic Dystrophy Syndrome Association RDSA
165
Neuromuscular
171
Dystonia Medical Research Foundation DMRF
177
Myoclonus Families United
181
Human Growth Foundation HGF
187
Dystrophic Epidermolysis Bullosa Research Association
193
Visual Disorders
199
National Society to Prevent Blindness
205
Subject Index
214
Title Index
222

Bibliographic information