Baby at Risk: The Uncertain Legacies of Medical Miracles for Babies, Families, and Society
Baby at Risk explores the growing phenomenon of "miracle" births and infants born with major medical problems that threaten or impair their health for life. The book examines the new assisted-reproduction technologies that are producing their share of miracle babies---but also a burgeoning population of imperiled newborns. Then there are the neonatal intensive care rescues that keep extremely premature and critically ill babies alive---some to live healthy lives, but others to face a bleak lifetime during which their families must care for them. Baby at Risk asks some very hard questions: whether some high-tech rescues serve the best interests of babies, their families, and the wider social good---or are they just satisfying the contemporary and ever-increasing Western passion for using expensive technologies? And, who are the key people who should be making decisions about imperiled newborns? Like the Terry Schiavo debate, these issues affect not only the patients, their families, and health workers, but also the government, media, and society at large. Through extensive interviews with parents and medical and nursing staff, and an exploration of ethical principles that guide deliberations about medical decisions, Baby at Risk examines the dilemmas that at-risk babies raise, considers the responses of those who care for and about babies, and proposes strategies for more effective and balanced decision-making in the uncertain world of imperiled newborns.
What people are saying - Write a review
We haven't found any reviews in the usual places.
The NICU Scene
Born at Risk
Birth of the NICU
Quality of Life Matters
Coping with comple
Experimenting with Babies
Life in the NICU
Death in the NICU
About the Author
Other editions - View all
advance directive aggressive Anita anomaly asked Baby at Risk Baby Doe regulations baby's BAIPA Becky began Benny Bill Silverman birth blood born brain breathing Brian Carter Bubble Boy Caesarean section cerebral palsy child Chloe Chris Chris Keller chromosome Clara Couney court David Debby decision Diana disabled doctors drug ECMO Elly Elly's ethics ex-preemies families fetal infant future parents genes genetic Graham Health heart Helen Harrison hospital incubator intensive interventions Judy Karla Kathryn Keegan ketogenic diet Laura lives lungs Meredith Michael Millers Miracle Baby Grows months mother neonatal neonatal intensivists neonatologists newborn NICU nurses obstetrician outcomes oxygen pain palliative palliative care Pediatrics percent preemies pregnancy premature babies prenatal advance directives problems rescue researchers resuscitate seizures sick babies Sidney Siva steroids stop stories survive talk technologies Texas Supreme Court things told treatment tube twins U.S. Supreme Court ventilator weeks Wendy wrote