Beyond Consent: Seeking Justice in Research

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Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman
Oxford University Press, Sep 3, 1998 - Medical - 208 pages
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Patients with cancer and AIDS now clamor for access to clinical trials. Federal policies governing research that once emphasized protecting subjects from dangerous research now promote access to clinical research. Have claims about justice and access to the benefits of research eclipsed concerns about consent and protection from risks? How can we make good and fair decisions about the selection of subjects and other questions of justice in research? Beyond Consent examines the concept of justice and its application to human subject research through the different lenses of important research populations: children, the vulnerable sick, captive and convenient populations, women, people of color, and subjects in international settings. To set the stage for this examination, and introductory chapter addresses the evolution of research policies. After a look at specific subject populations, the authors discuss the concept of justice for research with human subjects in the future and analyze justice throughout the research enterprise.
 

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Contents

An Introduction and Overview
1
2 The Evolving Story of Justice in Federal Research Policy
11
3 Research on the Vulnerable Sick
32
4 Children As Research Subjects
47
5 Gender and Research
67
6 Race Justice and Research
88
7 Convenient and Captive Populations
111
8 Justice in International Research
131
9 Theories of Justice in the Context of Research
147
10 Implementing Justice in a Changing Research Environment
166
Appendix
175
Index
181
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