Borrowed angels and roll models: disability and illness life narratives
Examines disability and illness life narratives published between the early 1980’s and 2004, including Frank Deford’s Alex: The Life of a Child, Lucy Grealy’s Autobiography of a Face, Ann Patchett’s Truth and Beauty: A Friendship, John Hockenberry’s Moving Violations and Kenny Fries’ Body, Remember. I apply studies of the culture of sentiment, shame, Erving Goffman’s stigma theory, masculinity studies, autobiography theory and disability studies to examining the ways in which these narratives, both individually, juxtaposed, and collectively, offer reinterpretations of the subject position implied by the term 'disability'. In every case, the authors I have included challenge the medical model of disability, choosing to portray themselves or their lost loved ones as energetic, unique, often funny and charming individuals worthy of our attention and respect.
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Losing Face The Life
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Alex Alex's American Ann Patchett's Ann's autobiography becomes body plot cancer Carol chapter chemotherapy child death childhood Chris Christine Nelson Christine's Christopher Reeve crip cultural cystic fibrosis daguerreotype daughter Deford describes disability narratives disability studies doctors Eakin Elaine Ipswitch embarrassment Erving Goffman experience face feel Frank friendship Goffman Gordon Grandfather Hockenberry Grealy's grief Hero of Love Hockenberry and Fries hospital illness interactions Ipswitch Israeli Jacqui Jason John Hockenberry Kenny Fries later legs lives look Lucy Grealy masculine medical model memoir mentions metaphor Milgram mirror mother Moving Violations narratives of child normal nurses pain Palestinian parental narratives Patchett writes pathographies patient advocacy person physical published readers reconstructive surgeries rejection relationship role romantic love scene Scott sense sentimental novel sexual shame social staring stigma story Suellen super-crip telethon tell Truth and Beauty VATER VATER Association wanted wheelchair