Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta

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Jones & Bartlett Publishers, Oct 22, 2010 - Medical - 256 pages
Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.
 

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Contents

Chapter 1 Introduction
1
Early Life Experiences
11
Meeting the Challenges
77
Life in the Fast Lane
167
Age of Participants at Time of First Interview
223
Education of Participants at Time of First Interview
225
Disability in American Society
227
Behavioral Phenotypes
231
Resilience
235
References
237
Photo Inserts
241
Index
245
Copyright

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About the author (2010)

Professor Emerita, University of California, San Francisco

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