Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta
Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.
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Chapter 1 Introduction
Early Life Experiences
Meeting the Challenges
Life in the Fast Lane
Age of Participants at Time of First Interview
Education of Participants at Time of First Interview
Disability in American Society
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