Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis ImperfectaBrittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI. |
Contents
| 1 | |
| 11 | |
Meeting the Challenges | 77 |
Life in the Fast Lane | 167 |
Age of Participants at Time of First Interview | 223 |
Education of Participants at Time of First Interview | 225 |
Disability in American Society | 227 |
Behavioral Phenotypes | 231 |
Resilience | 235 |
References | 237 |
Photo Inserts | 241 |
Index | 245 |
Other editions - View all
Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta Joan Ablon Limited preview - 2008 |
Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta Joan Ablon Limited preview - 2010 |
Common terms and phrases
able Ablon achondroplastic activities adults asked behavior bone breaks broken cast chair child childhood children with OI commented condition couldn’t dating didn’t disability disability rights movement doctor dwarfism everything experiences feel felt femur fractures friends girl going guess handicapped happen high school home teaching hurt ical interview issue kids kind knew laughing lives look LTC hospitals mainstream marriage married married with children mean mother never nurses Okay Osteogenesis Imperfecta Osteogenesis Imperfecta Foundation pain parents participants persons with OI phenotype physical differences physical therapy play pretty problems recounted relationships remember rods Sarah scoliosis sexual social someone stay stuff surgery talk tell there's things thought told took walk wheelchair woman women x-ray Yeah you’re