Brothers and Sisters of Disabled Children

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Jessica Kingsley Publishers, Jul 15, 2003 - Family & Relationships - 192 pages
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Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, Brothers and Sisters of Disabled Children details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, Peter Burke records siblings' views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future. He also considers the difficulties for siblings of finding their own identity in `disabled' families, competition for parental attention and the phenomenon of `disability by association' - the tendency for siblings to emulate a disabled brother's or sister's behaviour in an attempt to gain recognition for themselves at home, school and socially. Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.
 

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Contents

List of Figures
8
Chapter 1 Theory and Practice
11
The Research Design
29
Chapter 3 The Impact of Disability on the Family
41
Chapter 4 Family and Sibling Support
53
Chapter 5 Children as Young Carers
67
Chapter 6 Change Adjustment and Resilience
77
Chapter 7 The Role of Sibling Support Groups
91
Reflections on Professional Practice for Sibling and Family Support
119
Chapter 10 Postscript
129
Appendix 1 Questionnaire Support for Brothers and Sisters of Disabled Children
131
Appendix 2 Questionnaire Sibling Group Evaluation
137
References
141
Subject Index
151
Author Index
157
Copyright

Chapter 8 Support Services and Being Empowered
105

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About the author (2003)

Peter Burke is Senior Lecturer in Social Work at the University of Hull. He is a former social worker and has published widely in the field of child disability and child care law.

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