Brothers and Sisters of Disabled Children
Examining the overlooked subject of non-disabled siblings in families where there is a disabled child, Brothers and Sisters of Disabled Children details the experiences of these children and explores what it means to them to have a disabled brother or sister. Through family interviews and one-to-one meetings, Peter Burke records siblings' views on issues ranging from the everyday social restrictions on their lives, the discrimination they face at school, through to their concerns about the future. He also considers the difficulties for siblings of finding their own identity in `disabled' families, competition for parental attention and the phenomenon of `disability by association' - the tendency for siblings to emulate a disabled brother's or sister's behaviour in an attempt to gain recognition for themselves at home, school and socially. Putting this within the context of the existing framework of professional practice for sibling and family support services, the author stresses the importance and proven success of sibling support groups as models of empowerment and inclusion, and makes clear recommendations for future practice.
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Chapter 8 Support Services and Being Empowered
______ o ______ ______ o o o ______ acceptance assessment attending a siblings Autism behaviour bereavement brother or sister brothers and sisters Burke and Cigno Burke and Montgomery caring responsibilities Chapter child with disabilities child’s children with disabilities concerned consequence difficulties disability by association disabled brother disabled child disabled children disabled sibling discussion empowerment enable example express family members feelings identified impact of disability individual interview involved isolation learning disabilities locus of control Loughborough University model of disability Montgomery 2003 needs of siblings negative non-disabled sibling o o o ______ o o o o o o o o o o o o o o o one’s parents perceptions professional questionnaire Rachel reaction recognise research Burke resilience role sibling support group sibling’s siblings group siblings of children situation of siblings social exclusion social model stress Sure Start understanding University of Hull young carers