Caregiving: My Story, Your Guide

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AuthorHouse, Dec 9, 2010 - Health & Fitness - 196 pages
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This book is about the author’s personal experience as a caregiver, how he became one, everything he learned along the way and what a wonderful life two people can have together regardless of the situation.

The author wants to share what he learned; information from doctors, insurance companies, the pharmaceutical industry, disability claims and a number of other important issues including positive thinking and a happy life. His real life experiences have been “battle” tested in the totality of caregiving.

The information he shares relates to all caregivers and many situations; from diseases, accidental disability and war wounded veterans. He further describes how one caregiver, over a period of 24 years, was able to maneuver across the “battlefield,” still survive and not succumb to battle fatigue.

Someone else’s knowledge about something negative can make things more positive for you...and that is an important part of what this book is about.

Many books out there are a wonderful collection of data compiled from the internet and government sources and provide answers to many issues. This book covers the “must do” items which are based on his experiences that can be used as a reference guide and adapted to your individualized situation. Every patient is different and in order to earn the “Caregiver of the year” award, you must find what works best for them.

The most important issue is to realize that a severely disabled person needs to be treated with respect and dignity. Unfortunately, too many handicapped patients are disposed of like a useless piece of furniture or parked out of sight at some poorly run institution. What would you want to happen to you, should you ever be disabled as a result of an accident or disease?

REMEMBER — it can happen to anyone — anytime, including YOU!

 

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Contents

Caregiving
1
What Happened Along the Way
11
Orphan Disease
65
Relationship with Medical Professionals
82
Medication and Food The Good the Bad and the Ugly
90
Nutrition
102
Hospital Patient RepresentativeCaregiver
108
Feelings from positive to negative
114
Caregivers and Social Workers
124
National Support Organizations
132
Current Condition
138
Caregiver Speech
154
Ltr to MS Centers of FL Foundation
174
ObservationsQuestionsAnswers
180
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