Carrier: Untangling the Danger in My DNA
This memoir of one woman’s struggle with her DNA’s legacy and its effects on multiple generations of family is “amazing” in “the raw courage she exhibits” (Publishers Weekly, starred review).
When testing reveals that Bonnie Rough is a carrier of a genetic condition known as hypohidrotic ectodermal dysplasia, or H.E.D., she begins a journey into her family’s painful history and faces agonizing moral decisions about her own future as a parent.
Characterized by what look like superficial complications—unusual facial bone structure, an inability to sweat, lack of teeth or cone-shaped teeth, and sparse hair—H.E.D. is a rare condition with surprisingly serious repercussions for its sufferers. In this emotionally honest exploration of the disorder’s effects on her own family, Rough writes in the voices of her grandfather Earl, who had the condition, and her mother Paula, who inherited the gene and transmitted it to her son.
These first-person accounts of living with the effects of H.E.D.—and the damaging ways Earl tried to fight it, which led to him dying penniless and addicted to drugs—are marked by their raw honesty and anger. Knowing that the disorder is transmitted by mothers to sons, Rough and her husband must face their own excruciating choices about future parenthood, and confront how the past will inevitably shape their future.
What people are saying - Write a review
We haven't found any reviews in the usual places.
abortion afternoon amniocentesis amyloidosis asked baby doll breath brother called can’t carrier Cheyenne child couldn’t crying Curt dad’s Dan’s daughter dinner doctor door dreams drove drugs Earl Earl Lee Earl’s Enz-All everything eyes face father feel felt fetus friends genetic genetic counselor girl going grandfather grandfather’s Greeley Greg hadn’t hair hand happy head healthy heard Helman Hickman hospital hypohidrotic ectodermal dysplasia imagine inside Josephine Junior kids knew lake Lake Harriet later laughed looked Minneapolis morning mother Nebraska never night Okay parents Paula Pine Bluffs pregnancy preimplantation genetic diagnosis pulled remember Sadie Seattle seemed sister sleep smile stay stood stop talk teeth tell There’s things thought tiny told took tried trying ultrasound wait walked wanted wasn’t watched weeks Weld County What’s window wondered You’re