Dealing with Andrew: Progression of a Child with 22Q13 Deletion, or Phelan Mcdermid Syndrome
As a mom dealing with my son's diagnosis and treatments has been a rough road. I am sure there are many parents that have struggled more than I have. It is so harshly treated in our society that children with disabilities is a taboo. I truly see having a child with disabilities as a blessing. I have become more aware of my surroundings and of my own conciousness. I certainly learned how to cope with society and my childs disability. It isn't the children that need to learn it's us who need to learn what their needs are. I am definately a stronger individual and I am aware of all life has to offer. There are many promising methods I have come accross that failed but I didn't give up on my child. I have learned to have unconditional love, faith in helping my child, and hope for a way to deal with my own emotions. -Carmen R. Villareal BBA, EMT-1
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22q13 Deletion Syndrome able Andrew’s behaviors Andrew’s finger answer Applied Behavior Analysis appointment Autism Autism Therapy baby behavior analyst blood boys brother Bubba called Cerebral palsy changes Characteristics of 22q13 Children’s Hospital chromosome 22 couldn’t crib Cytogenetics Dealing with Andrew dentist Desmond Kelly developmental delays diagnosis disabled child doctor door Down’s syndrome ex-husband explained family member father feel finally frustrated Genetic grandma Grappa guess happened hour husband Individualized Education Program KARYOTYPE looked medication mental retardation months mother never night noticed number three nurse Paramedic parents Phelan McDermid Syndrome plastic surgeon psychologist pull quickly Raymundo Jr remember seemed skill loss sleep someone special needs children speech started talking teach tell therapy things thought told took Andrew trying understand waiting walked wanted wasn’t weeks wrong yelled