Disability Visibility: First-Person Stories from the Twenty-First Century

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Alice Wong
Knopf Doubleday Publishing Group, Jun 30, 2020 - Biography & Autobiography - 336 pages
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“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act,

From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
 

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Contents

Introduction by Alice Wong
1
For Kitay D Davidson Who Loves
28
The Erasure of Indigenous People in Chronic Illness
47
Common Cyborg
63
BECOMING
83
Guide Dogs Dont Lead Blind People
101
Nurturing Black Disabled
117
How to Make a Paper Crane from Rage
134
Hannah Gadsby Nanette
179
Lost Cause
197
On NYC Paratransit Fighting for Safety
205
Gaining Power through Communication Access
220
Completing the Vision for Black Lives
236
Still Dreaming Wild Disability Justice Dreams
250
Crip HandMeDowns
267
The Beauty of Spaces Created for and by Disabled People
271

DOING
147
So Not Broken
164
Further Reading
293
Copyright

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About the author (2020)

Alice Wong is a disabled activist, media maker, and research consultant based in San Francisco, California. She is the founder and director of the Disability Visibility Project, an online community dedicated tocreating, sharing, and amplifying disability media and culture. Alice is also the host and co-producer of the Disability Visibility podcast and co-partner in a number of collaborations such as #CripTheVote and Access Is Love. From 2013 to 2015, Alice served as a member of the National Council on Disability, an appointment by President Barack Obama. You can follow her on Twitter: @SFdirewolf. For more: disabilityvisibilityproject.com.

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