Epilepsy Across the Spectrum: Promoting Health and Understanding
Committee on the Public Health Dimensions of the Epilepsies, Board on Health Sciences Policy, Institute of Medicine
National Academies Press, Jul 13, 2012 - Medical - 521 pages
Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living.
The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.
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2 Surveillance Measurement and Data Collection
3 Epidemiology and Prevention
Quality Access and Value
5 Health Professional Education
6 Quality of Life and Community Resources
7 Educating People with Epilepsy and Their Families
8 Public Education and Awareness
9 Next Steps and Recommendations
IOM DataGathering Effort
Data on Specialized Epilepsy Centers Report to the Institute of Medicines Committee on the Public Health Dimensions of the Epilepsies
Health Professionals Who Care for People with Epilepsy Possible Roles and Relevant Boards and Organizations
Other editions - View all
accessed February antiepileptic drugs assess associated autism spectrum disorders awareness campaign Chapter children with epilepsy chronic clinical codes cognitive collaborative committee community services comorbidities costs death in epilepsy developed diagnosis disability disease disorder educational programs effects efforts electronic health records Epilepsy and Behavior epilepsy centers epilepsy education Epilepsy Foundation Epilepsy Research epilepsy surveillance epilepsy-related epilepsy-specific epileptologists evaluation guidelines health care health care providers health literacy health professionals Hesdorffer hospital identify improve individuals with epilepsy injury interventions Journal knowledge lepsy Medicare Medicine mental health conditions National needs neurocysticercosis neurologists Neurology nurses older adults organizations outcomes patient and family patients with epilepsy pediatric percent physicians population population-based prevention public health referral registries risk factors seizure medications seizure type self-management social specific status epilepticus stigma SUDEP tion traumatic brain injury treatment vagus nerve stimulation W. A. Hauser websites