Genetic information can be misused. It can be used to discriminate against people in health insurance and employment. People known to carry a gene that increases their likelihood of developing cancer, for example, may get turned down for health insurance. Without health insurance, it may be impossible for some people to get treatment for a disease that could be fatal. This may lead some people to decide against genetic testing for fear of what the results might show, and who might find out about them. It also could lead some people to decline participation in biomedical research such as studies of gene mutations associated with certain diseases that examine the history of families prone to those maladies. This new book examines some of the hot areas of research in the field.
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GENETIC TESTING SCIENTIFIC BACKGROUND FOR POLICYMAKERS
GENETIC INFORMATION LEGAL ISSUES RELATING TO DISCRIMINATION AND PRIVACY
GENETIC NONDISCRIMINATION IN EMPLOYMENT A COMPARISON OF TITLE II PROVISIONS IN S 358 and HR 493 110th CONGRESS
358 as reported 493 as passed Accountability Act Amendments apply April 25 assisted reproductive technology based on genetic bill states Revised cancer chromosomes Congress Court coverage CRS Report definition of genetic diagnostic disability disclose discrimination based EEOC employee or member employment agency family medical history family member gene genetic counselor genetic discrimination Genetic Information Nondiscrimination genetic services genetic test genotypes group health plans health care professional health information health insurance HIPAA Human Genome Human Genome Project include genetic information individual or family individual’s Information Nondiscrimination Act information with respect insurance and employment issues joint labor-management committee labor organization manifested disease March 29 Medigap mutations nondiscrimination provisions patients pharmacogenomic plans and insurance potential premiums privacy rule procedures this title Prohibits group health protected genetic information proteins or metabolites purchasing genetic information receipt of genetic requests or requires Section Senate subsection undergo a genetic unlawful employment practice violation workplace