Genetic Testing: Scientific Background and Nondiscrimination Legislation

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Nova Publishers, 2006 - Medical - 69 pages
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Collectively, genetic diseases and common diseases with a genetic component pose a significant public health burden. With completion of the human genome sequence, scientists will now focus on understanding the clinical implications of the sequence information. Clinical genetic tests are becoming available at a rapid rate. Testing is regulated by the federal government and tests are beginning to be included in health insurance benefits packages. Issues surrounding genetic testing and non-discrimination addressed in this book include: What is health information and how is it currently used by health insurers and employers?; What is genetic information?; Is genetic information different from other health information?; What are the implications of having genetic information: for the individual undergoing testing? for his/her family? for society?; What evidence exists to suggest that discrimination is a problem?; Will the proposed legislation have been sufficient to protect "genetic information" and "genetic tests" that are of concern?; How does the proposed legislation compare with existing laws and regulations governing discrimination?

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Status of Genetic Testing in the United States
Health Information
What Is Genetic Information?
What Evidence Is There That Genetic Discrimination Exists?
HOW Do S 306 AND HR 1227 Compare to Existing Law?
How Would the Proposed Legislation Protect Genetic Information?
Title I Health Insurance
Title II Employment
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Page 1 - There are detailed provisions on enforcement which generally apply the remedies available in existing civil rights laws such as Title VII of the Civil Rights Act of 1964, 42 USC 2000e-4 et seq.

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