Genetic non-discrimination: examining the implications for workers and employers : hearing before the Subcommittee on Employer-Employee Relations of the Committee on Education and the Workforce, U.S. House of Representatives, One Hundred Eighth Congress, second session, July 22, 2004

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Page 101 - I know also that laws and institutions must go hand in hand with the progress of the human mind. As that becomes more developed, more enlightened, as new discoveries are made, new truths disclosed, and manners and opinions change with the change of circumstances, institutions must advance also, and keep pace with the times.
Page 78 - ... future disability. The facts are diametrically opposed to this common belief. The results of genetic-based diagnosis and prognosis are uncertain for many reasons. Predicting the nature, severity and course of disease based upon a genetic marker is an additional difficulty. For most genetic diseases the onset date, severity of symptoms, and efficacy of treatment and management are highly variable.
Page 77 - ... care and treatment." The fears engendered by genetic discrimination— fears of disclosure of genetic information to physicians and of participation in genetic testing and research— have been well documented in numerous studies. In one study, 83 percent of the participants indicated that they would not want their insurers to know if they were tested and found to be at high risk for a genetic disorder17. In a 1997 survey of more than 1,000 individuals, 63 percent of the participants reported...
Page 78 - Act (ADA), an anti-discrimination law, protects individuals who have an impairment that substantially limits them in a major life activity, who have a record of such an impairment, or who are regarded as having such an impairment31.
Page 4 - To deny employment or insurance to a healthy person based only on a predisposition violates our country's belief in equal treatment and individual merit.
Page 76 - Health, observed: while genetic information and genetic technology hold great promise for improving human health, they can also be used in ways that are fundamentally unjust. Genetic information can be used as the basis for insidious discrimination. . . . The misuse of genetic information has the potential to be a very serious problem, both in terms of people's access to employment and health insurance and the continued ability to undertake important genetic research/ Genetic Discrimination is a...
Page 18 - The American Academy of Actuaries is the public policy organization for actuaries practicing in all specialties within the United States. A major purpose of the Academy is to act as the public information organization for the profession. The Academy is non-partisan and assists the public policy process through the presentation of clear and objective actuarial analysis.
Page 113 - Before the Subcomm. on the Constitution of the House Comm on the Judiciary, 109* Cong. (2005) (Statement of Armand Derfner, Attomey Derfher, Altaian & Wilbora). "a According to Black's Law Dictionary, a "de minimis...
Page 73 - As you know, the National Breast Cancer Coalition is a grassroots advocacy organization made up of more than 600 organizations and tens of thousands of individuals and has been working since 1991 toward the eradication of this disease through advocacy and action. NBCC supports increased funding for breast cancer research, increased access to quality health care for all women, and increased influence of breast cancer activists at every table where...
Page 73 - I am Fran Visco, a breast cancer survivor, a wife and mother, a lawyer and President of the National Breast Cancer Coalition.

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