Genetics and Society: A Sociology of Disease

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Psychology Press, 2004 - Science - 197 pages
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Genetic science has advanced rapidly in recent years; things happen now that might have seemed like science fiction only ten years ago. Genetics and Society looks at the history of this science and the wide-ranging impact it has had on contemporary society. Using fascinating and cutting-edge examples throughout, Anne Kerr examines topics as diverse as:

  • the institutional structures that have grown up around the diagnosis and treatment of genetic disorders
  • the media representation of genetic debates from designer babies to the genetic sources of alcoholism
  • the politics of genetic decision-making and the state regulation of both genetic research and the biomedicine industry.

Each chapter begins with a summary and a definition of key terms and ends with annotated notes on further reading, meaning that it is as accessible for the layman as it is for the scientist. The resulting student-friendly text will be essential reading for anybody with an interest in genetic science and the impact it is having on society.

 

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Contents

Introduction
1
Why this book now?
3
Themes and chapters
9
Past present and future
10
Patients professionals and publics
11
Knowledge practice and things
12
Past
15
Introduction
16
Risk and responsibility
94
Conclusion
101
Further reading
102
Biobanks
103
Informed consent
106
Privacy and confidentiality
111
Commercialization and governance
116
Conclusion
121

Surveillance coercion and voluntarism
18
Prevention
22
Reductionism
24
Commerce governance and expertise
28
Contemporary debates about eugenics
30
Conclusion
36
Further reading
37
Discovery
38
The discovery discourse
43
Knowledge practice and things
45
Commercialization
46
Governance
50
Expert relations
53
Defining disease
56
Conclusion
62
Reproduction
64
Reproductive choices
66
Downs syndrome screening in the United Kingdom
74
Conclusion
82
Further reading
83
Patients
84
The psychosocial approach
86
Biography narratives
89
Further reading
122
Publics
123
Public opinion
125
Lay knowledge
132
Active citizenship
134
Constructing citizens and publics
138
Conclusion
142
Futures
143
Policyspeak
145
Public bioethics
148
Biomedicine
154
Mass media
156
Conclusion
160
Conclusion
161
Past present and future
162
Patients professionals and publics
163
Knowledge practice and things
165
Researching genetics and society
167
Glossary
170
Notes
174
Bibliography
175
Index
189
Copyright

Other editions - View all

Common terms and phrases

Popular passages

Page 187 - First and second trimester antenatal screening for Down's syndrome: the results of the Serum, Urine and Ultrasound Screening Study (SURUSS).
Page 186 - A. (1992). Free beta human choriogonadotropin in Down's syndrome screening: a multicentre study of its role compared with other biochemical markers. Ann. Clin. Biochem., 29, 506-18.
Page 186 - Spencer K, Spencer CE, Power M, et al. Screening for chromosomal abnormalities in the first trimester using ultrasound and maternal serum biochemistry in a one stop clinic: a review of three years
Page 184 - Ltd. 2002. Biobank UK: A Question of Trust: A Consultation Exploring and Addressing Questions of Public Trust.

About the author (2004)

Anne Kerr is an early childhood teacher with 25 years experience relating to young children. She knows the value and importance of stories to assist children to make sense of life events.

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