Health Data in the Information Age: Use, Disclosure, and Privacy

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National Academies Press, Jan 1, 1994 - Computers - 272 pages
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Regional health care databases are being established around the country with the goal of providing timely and useful information to policymakers, physicians, and patients. But their emergence is raising important and sometimes controversial questions about the collection, quality, and appropriate use of health care data.
Based on experience with databases now in operation and in development, Health Data in the Information Age provides a clear set of guidelines and principles for exploiting the potential benefits of aggregated health data--without jeopardizing confidentiality.
A panel of experts identifies characteristics of emerging health database organizations (HDOs). The committee explores how HDOs can maintain the quality of their data, what policies and practices they should adopt, how they can prepare for linkages with computer-based patient records, and how diverse groups from researchers to health care administrators might use aggregated data.
Health Data in the Information Age offers frank analysis and guidelines that will be invaluable to anyone interested in the operation of health care databases.

 

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Contents

Contents
SUMMARY 1
INTRODUCTION 27
HEALTH DATABASES AND HEALTH DATABASE ORGA 40
PUBLIC DISCLOSURE OF DATA ON HEALTHCARE 91
Important Principles of Public Disclosure 95
Important Elements of Public Disclosure 96
Strengthening Quality Assurance and Quality Improvement Programs 116
Appendix 3A 123
CONFIDENTIALITY AND PRIVACY OF PERSONAL DATA 136
REFERENCES 214
APPENDIXES 225
B COMMITTEE ON REGIONAL HEALTH DATANET 232
GLOSSARY 239
INDEX 247

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