Inclusive Research with People with Learning Disabilities: Past, Present and Futures

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Jessica Kingsley Publishers, Mar 19, 2003 - Family & Relationships - 256 pages
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In this thought-provoking book, Jan Walmsley and Kelley Johnson discuss participative approaches to research and provide an up-to-date account of inclusive practice with individuals with learning disabilities. Drawing on evidence from two major studies, they explain how lessons learnt from inclusive research in the learning disability field are applicable to others working with marginalized groups. The authors examine the origins and the process of inclusive research, describing: * how and why it takes place * who carries it out * who funds it * how it is designed * how it relates to policy and practice. They look at the challenges inherent in this work, such as balancing the voice of the researcher with that of disabled participants and clarifying roles within research projects, and explore how it can become more inclusive and empowering. Providing valuable information and advice to researchers, policy makers and students as well as other health and social care professionals, this book presents a comprehensive examination of participative research in social care.
 

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Contents

Acknowledgements
7
Reputable? Helpful?and Inclusive?
9
Part 1 Describing the Past
21
Or Where Did It All Start?
23
2 Normalizing Emancipating and Making a Stand
44
Beginnings
61
4 Knowing the Elephant
79
Part 2 Exploring the Research Process
93
8 Managing Inclusive Research
146
9 Who Uses it and How?
164
10 What Has Been Achieved?
183
Part 3 Beyond Rhetoric to New Realities
189
11 Beyond Rhetoric
191
12 To New Realities
207
Why Do It?
220
References
224

5 Nothing About Us Without Us Good Times Bad Times
95
Making Research Work
109
7 What Matters to People with Learning Disabilities?
126

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About the author (2003)

Jan Walmsley is a Senior Lecturer at the Open University School of Health and Social Welfare in Milton Keynes. Kelley Johnson is Professor of Disability, Policy and Practice at the University of Bristol, and Director of the Norah Fry Research Centre and together with Rannveig Traustadottir, edited Women with Intellectual Disabilities for Jessica Kingsley Publishers.

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