Jesse: A Mother's Story of Grief, Grace, and Everyday Bliss
Jesse Cooper was an honor-roll student who loved to windsurf and write poetry. He also had severe cerebral palsy and was quadriplegic, unable to speak, and wracked by seizures. He died suddenly at age seventeen.
In fiercely honest, surprisingly funny, and sometimes heartbreaking prose, Jesse’s mother, Marianne Leone, chronicles her transformation by the remarkable life and untimely death of her child. An unforgettable memoir of joy, grief, and triumph, Knowing Jesse unlocks the secret of unconditional love and speaks to all families who strive to do right by their children.
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KNOWING JESSE: A Mother's Story of Grief, Grace, and Everyday BlissUser Review - Kirkus
A mother's passion-filled memoir of her fight to give her disabled son the life he deserved.In 1987, screenwriter and actress Leone gave birth to Jesse, a premature boy whose prognosis was poor and ... Read full review
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aide arms asked baby Bernadette body brain Brandy called cerebral palsy chair Chris Chris’s Christmas Christopher Nolan classroom Connie couldn’t Craniosacral therapy crying disabled kids dream drugs Dymphna early intervention Emmy Clarke eyes face feel felt film friends giggles Goody grade hair head hear Hoboken home/school book inclusion Jesse Cooper Jesse died Jesse’s teacher Joan John Sayles knew Knowing Jesse laughing learning living look Madonna Maria von Trapp Marianne meeting Michael Imperioli Millburn months mother movie neurologist never night Orton-Gillingham parents phenobarbital physical picture pool preschool primal scream quadriplegic rage screaming segregated seizures sleep smile social worker someone sound sped director speech therapist Suzanne talk tears tell therapy thing thought told took trying voice walk wasn’t watching week wheelchair woman words worried yelled