Life as we know it: a father, a family, and an exceptional child

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Vintage Books, Mar 31, 1998 - Medical - 284 pages
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When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the
medical procedures, insurance guidelines, policies, and representations that surround every child our society
designates as disabled.  In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael
Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person
rather than as a medical, genetic, or social problem.

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User Review  - karl.steel - LibraryThing

Seems that most of my reviews respond to other reviews.... Currently, the only other review for this book refers to it as prone to "ranting, pontificating or just being condescending." Clearly the ... Read full review

Life as we know it: a father, a family, and an exceptional child

User Review  - Not Available - Book Verdict

One would not expect a book on Down's syndrome from Berube (Higher Education Under Fire, Routledge, 1995). But then, Berube wasn't expecting his son, Jamie, to be born with the condition. This book is ... Read full review



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About the author (1998)

Michael Bérubé is director of the program for research in the humanities at the University of Illinois at Champaign-Urbana.  He is the author of five books, including Public Access: Literary Theory and American Cultural Politics, and has written for  The New Yorker,  The Village Voice, and many academic journals.  He lives in Champaign, Illinois, with his wife, Janet Lyon, and their two sons, Nick and James.

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