Mothering Special Needs: A Different Maternal JourneyThis book explores the lived experience of mothers raising a child with a learning disability, through interviews with mothers of children with autistic spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD) and Down syndrome. With frequent personal accounts from mothers themselves, Mothering Special Needs encourages other women who have children with special needs to recognize and express their own aspirations and needs for self-fulfilment. It addresses the social construction of motherhood, discussing issues such as mother-blame and society's images of the self-sacrificing mother, in the context of raising a child with a learning disability. It also looks at real-life experiences of working with professionals, giving examples of both good and bad practice. This is an invaluable book for mothers as well as for professionals working with families that include children with disabilities. |
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Contents
11 | |
15 | |
25 | |
3
Maternal Coping | 49 |
4
MaternalWork
and Employment | 87 |
5
Mothers Relationships
with Fathers Families
and Social Networks | 121 |
6
A Different Maternal
Journey Conclusion | 161 |
Epilogue | 179 |
Profile of Participants | 181 |
Useful Contacts | 183 |
Books by Mothers of Children
with Special Needs | 187 |
189 | |
199 | |
205 | |
BACK COVER | 209 |
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Common terms and phrases
ADHD amniocentesis Anne Annie Ryan Asperger syndrome baby behaviour Betty Brenda Caitriona child with special childcare childminders children with special choice Christy Brown context cope Despite different maternal journey Eoin experience fathers feel felt he’s Helen high-functioning autism home full husband Ireland Irish Julie Kathy Sinnott lack living look mainstream school Margaret Martina Mary Mary’s Miriam mother of Andrew mother of Donal mother of Donnacha mother of four mother of John mother of Jonathan mother of Kevin mother of Michael mother of Noel mother of Patrick mother of Susan mother of William motherhood mothering a child mothers of children narratives never paediatrician parents participants professionals Ritalin role service provider severe learning disability social worker society son’s special needs speech therapist stay at home stress and depression struggle support groups Susan and Sally talking there’s Therese things Trish women worry wouldn’t you’re
Popular passages
Page 31 - The State shall, therefore, endeavour to ensure that mothers shall not be obliged by economic necessity to engage in labour to the neglect of their duties in the home.
Page 31 - The State acknowledges that the primary and natural educator of the child is the Family and guarantees to respect the inalienable right and duty of parents to provide, according to their means, for the religious and moral, intellectual, physical and social education of theii children.
Page 2 - The Complete Guide to Asperger's Syndrome Tony Attwood ISBN 978 1 84310495 7 AUTISTICS...
Page 28 - ... to some leisure, some gratification of aesthetic desires and other accoutrements of the good life, gratification and fulfillment we need not only for their own sake but also so that we can love Sesha without resentment that her overwhelming needs rob us of the satisfactions we might otherwise enjoy. We have moved to a model, which for want of any other adequate term I'll call "distributed mothering.
Page 6 - I would like to thank each and every one of them for their competency and their professionalism in dealing with this.
Page 17 - This blurring of the boundaries between functions typifies woman's universe. In the domestic sphere, the menial tasks of family servicing are wrapped up and presented as part and parcel of her role as mother, and given the same affective value as the feelings she has about the family members for whom she is performing these tasks.
Page 189 - E. and Clarkson, J. (1997) Children with disabilities and the education system: the experiences of fifteen fathers.
Page 189 - Bassin, D., Honey, M. and Mahrer Kaplan, M. (eds) (1994) Representations of Motherhood. New Haven: Yale University Press.
Page 189 - European social theory', in C. Barnes, M. Oliver and L. Barton (eds) Disability studies today, Cambridge: Polity Press, pp 120-38.