Occupational Therapy in Epidermolysis bullosa: A holistic Concept for Intervention from Infancy to Adult

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Springer Science & Business Media, Oct 23, 2012 - Medical - 190 pages

Epidermolysis bullosa (EB) is the collective term for a heterogenous group of genetic skin disorders characterised by the formation of blisters and erosions on skin and mucous membranes.

This book deals with early childhood motor and perceptual development, a particular challenge for children with extremely fragile skin. Going into functional treatment, it addresses rehabilitation of hands and feet in EB patients with fusions or contractures.

The authors are occupational therapists with long-term experience in the management of EB patients. In an extraordinary holistic approach, they present a combination of paediatric and functional areas of treatment.

Occupational therapy tools and interventions can help alleviate a number of accompanying complications and symptoms of EB, enhance self-care, and improve quality of life in general.

Due to its practical approach, this book not only serves as a unique guide for doctors and health care professionals but is also comprehensible and useful for patients.

 

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As an occupational therapist, I can say it is very useful book and easy understanding. I am translating it in Persian that Iranian children, family, care givers and OTs are able to use it. Thanks from Hedwig Weiß and Florian Prinz to write this book.
Elham Sadeghein, Occupational therapist

Contents

1 Epidermolysis Bullosa EB the Condition
1
2 Motor Developmentin Early Childhood
11
3 Treatment of the TactileVestibular andProprioceptive Perception
27
4 Development of Hand Functions
41
5 Graphomotor Skills
48
6 Independence in Everyday Life and Provision of Assistive Devices
59
7 ClientDirected Therapy Using the COSA
94
8 Rehabilitation of the Hand
103
9 Rehabilitation of the Foot
151
10 Conclusion
179
Backmatter
183
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