Perfectly Flawed

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Impress Books Limited, May 1, 2006 - Family & Relationships - 152 pages
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This is an extraordinary and moving account of a family coping with Friedreich's Ataxia, a debilitating genetic illness. It describes how Krystie and her family coped with the diagnosis, the intensive medical treatment that followed and her battle to receive mainstream education. Krystie's bravery and zest for life is an inspiration to us all, but especially to those facing a diagnosis of genetic illness. "My future's full of uncertainty. Sometimes I worry that because of my illness, I won't be able to do much for myself later on in life; that all my days of fun have been and gone. But I realise that actually that isn't true. There's always another happy day just around the corner. Life is for the living, and I refuse to sit back and allow everyone else to move on without me. . But I do know one thing, whatever happens, I won't waste a second of my life, not ever!" Krystie Maddox-Lue, 2006
 

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User Review  - arielgm - LibraryThing

Small press, written to compliment a BBC documentary. Maddox sets out to write about her daughter’s genetic illness, Friedreich’s Ataxia, though the book is actually about how difficult, dramatic and chaotic her own life is. Read full review

Contents

Lightning never strikes twice
1
A mothers intuition
6
A swimming lesson
31
The waiting game
34
Explaining degenerative to a child
42
Reality bites
49
Family ties
59
Getting an education
69
Media girl
83
The highs and lows of 2004
90
Contents
99
Major surgery
108
Anthonys memories
127
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