Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings

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Psychology Press, 2001 - Health & Fitness - 467 pages
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How can we measure the quality of life in children and adolescents with chronic disease?
Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents.
Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
 

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Contents

Models and Perspectives
23
Generic HealthRelated Quality of Life Measures
49
A Health Care
89
Chronic Conditions as a General Class
123
Quality of Life from a Patient Group Perspective
151
Quality of Life in Eamilies of Youths with
181
Abdominal Disorders
213
Asthma
241
Cardiovascular Disease
297
Cystic Eibrosis
335
Headaches
357
InsulinDependent Diabetes Mellitus
373
Intellectual disability
403
Conclusions and Euture Directions
431
Index
457
Copyright

Cancer
267

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About the author (2001)

Jan L. Wallander, PhD is affiliated with the Civitan International Research Center at the University of Alabama @ Birmingham.

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