Quality of Life in Child and Adolescent Illness: Concepts, Methods, and Findings
Hans M. Koot, Jan Lance Wallander
Psychology Press, 2001 - Health & Fitness - 467 pages
How can we measure the quality of life in children and adolescents with chronic disease?
Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents.
Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.
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Models and Perspectives
Generic HealthRelated Quality of Life Measures
A Health Care
Chronic Conditions as a General Class
Quality of Life from a Patient Group Perspective
Quality of Life in Eamilies of Youths with
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activity adjustment adults approach associated asthma behavioral cancer cardiac cardiovascular disease childhood children and adolescents children with asthma children with chronic chronic conditions chronic illness clinical trials conceptual congenital construct construct validity correlations cyanotic cystic fibrosis developmental diabetes diabetes mellitus diagnosis disability disorders domains ECMO effects emotional Eor example Eurther evaluation factors functional status glycemic control headache health outcomes health status health,related quality hypoglycemia IDDM impact inflammatory bowel disease insulin intervention issues Journal of Pediatric Kaplan levels long,term migraine oncology parents patients Pediatric Psychology Pediatrici physical population prevalence problems psychiatric psychological psychometric psychosocial QALYs QL assessment QL in children QL instruments QL measures QL research QUALITY OE LIEE questionnaire ratings reliability reported risk sample scale Schalock scores self,report specific studies subscales surgery symptoms therapy transplantation treatment validity Varni Wallander well,being young youths