Rethinking palliative care: a social role valorisation approach
This book's striking message is that palliative care does not deliver on its aims of valuing people who are dying and making death and dying a part of natural life. The author argues for the de-institutionalisation of palliative care and the development of an alternative framework to the institutional approaches found in hospices, palliative care units and community-based palliative care services. Using the theory of Social Role Valorization it investigates the way in which palliative care perpetuates the social devaluation of people who are dying It recommends a series of pivotal changes in the approach of palliative care workers.
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two Paradigm of care
three Palliative care
four Social Role Valorisation
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19th century alternative become carers Chapter charity citing Clark and Seymour clinical conceptualisation concerning context culture death and dying deathmaking devalued characteristic devalued classes devalued roles deviance dispersed services dominant effect evil example face of death Granshaw harm idea individual inpatient institutional approaches institutional expression institutional model institutionalisation intellectual disability services involved Kellehear 2005a living loss medical and medico-psychological medical model medicalisation medicine modern moral moral therapy needs NHWW non-institutional normalisation normative nursing palliative care services palliative care system palliative care's paradigm paradigmatic analysis Patch Adams patients perspective Porter practitioners problems processes professionalisation programme public health approaches relevance religious ethos risk romantic idealisation Saunders service system service user shift social devaluation social organisation Social Role Valorisation society specialist hospitals SRV theory SRV-based SRV's St Christopher's Hospice status symbolic therapy unconscious understanding valued roles valued social roles vulnerability Wolfensberger 1992a