Tales from the Bed: On Living, Dying, and Having It All

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Simon and Schuster, Nov 1, 2007 - Biography & Autobiography - 256 pages
Jenifer Estess is a woman on the verge: She's about to launch her own company; she's looking buff and dating vigorously; she's driving in the fast lane -- with the top down. At the age of thirty-five, Jenifer dreams of falling in love and starting a family. Then she notices muscle twitches in her legs. Walking down a city block feels exhausting. At first, doctors write off Jenifer's symptoms to stress, but she is quickly diagnosed with ALS, a fatal brain disease that is absolutely untreatable.

Max out your credit cards and see Paris, suggests one doctor. Instead of preparing to die, Jenifer gets busy. She dreams deeper, works harder, and loves endlessly. For Jenifer, being fatally ill is not about letting go. It's about holding on and reaching -- for family, friends, goals.

Jenifer's girlhood pact with her sisters Valerie and Meredith -- nothing will ever break us apart -- guides them as Jenifer faces down one of the most devastating illnesses known to humankind. That same enduring pact inspires the creation of Project A.L.S., a movement started by the sisters that changes the way science and medicine approach research for ALS and the related diseases Parkinson's and Alzheimer's, and which has already raised more than $18 million. Will Project A.L.S. help scientists discover medicine in time for her?

Jenifer answers these questions and others in this beautifully written and wholly inspiring memoir that celebrates a life fuelled by memory. Tales from the Bed forces us to reconsider society's notion of "having it all," and illustrates, more than anything, the importance of endurance, hope, and, most of all, love.
 

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LibraryThing Review

User Review  - nyiper - LibraryThing

Very readable---but immediately, even with the tremendous work these three sisters did to get the A.L.S. organization they founded going----help comes with who-they-knew---especially Jenifer, in the ... Read full review

LibraryThing Review

User Review  - tealightful - LibraryThing

This is a book about Jenifer Estess' battling with ALS, a fatal disease which has know cure and no treatment. I think Ms. Estess' was a very intelligent woman, fierce, determined and beyond sad that ... Read full review

Selected pages

Contents

Section 1
1
Section 2
19
Section 3
28
Section 4
47
Section 5
58
Section 6
82
Section 7
98
Section 8
118
Section 9
138
Section 10
154
Section 11
174
Section 12
193
Section 13
207
Copyright

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About the author (2007)

Jenifer Estess was the CEO and founder of Project A.L.S. She lived in New York City, where she spent her best times with Jake, Willis, Jane, James, Kate, and the rest of her family.

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