The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

Front Cover
St. Martin's Press, Apr 26, 2011 - Biography & Autobiography - 304 pages

A New York Times Top 10 Book of 2011

"[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises...It is a beautiful book, heartfelt and profound, warm and wise."
—Jane Bernstein, author of Loving Rachel and Rachel in the World

Ian Brown's son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.

Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker's doctors can't answer. In his journey, he offers an insightful critique of society's assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.

Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

 

What people are saying - Write a review

Excellent Read

User Review  - lenabeans - Overstock.com

This read was an amazing look into a life of a family trying to handle the diverse needs of each family member. It opens a world of wonder and makes one want to rethink how own life is being lived. Read full review

THE BOY IN THE MOON: A Father's Journey to Understand His Extraordinary Son

User Review  - Kirkus

A father's candid, heart-wrenching account of raising, loving and trying to connect with and gain insight into his severely disabled son.A journalist for The Globe and Mail, Brown wrote a series of ... Read full review

Selected pages

Contents

one
1
two
11
three
24
four
34
five
55
six
75
seven
81
eight
112
nine
142
ten
158
eleven
184
twelve
212
thirteen
235
fourteen
263
acknowledgements
291
Copyright

Other editions - View all

Common terms and phrases

About the author (2011)

IAN BROWN is an author and a feature writer for The Globe and Mail. The Boy in the Moon has won three of Canada's most prestigious literary awards: the Charles Taylor Prize, the Trillium Book Award, and the British Columbia National Book Award for Nonfiction.

Bibliographic information