The Jeffrey Journey - 2010 Edition

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Milverstead Publishing LLC, 2010 - Biography & Autobiography - 300 pages
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Revised and Updated - 2010 with new resources and dedications. In May, 1997, Randy and Helen Baldwin eagerly welcomed their third child, Jeffrey, as did his older siblings, Matthew and Katie. Jeffrey's arrival, unplanned but greatly anticipated, sparked a few adjustments in this family long removed from diaper duty, but Jeffrey was obviously a special gift. Eight weeks later, life took a completely unexpected downward spiral into the depths of despair when Jeffrey was diagnosed with Spinal Muscular Atrophy (SMA), a rare, progressive genetic neuromuscular disease with deadly ramifications. The neurologist handed over the utterly devastating news that Jeffrey had a severe case of the most destructive form without a morsel of hope that anything could be done to thwart the effects of the killer disease. Faced with the nightmare that their baby was expected to die within two years and that there was no treatment or cure, Randy and Helen took their faith in God to a higher level and embarked on a quest to defy SMA and its stranglehold on their precious baby's life. They sought the expertise of alternative practitioners and relentlessly relied on prayers for Jeffrey's health and for strength, courage, and wisdom for themselves and their family. The Jeffrey Journey is the story of how one family - with friends and family, prayer, and God's grace - rose to the challenge of caring for a dying child as they also realized the countless blessings left by their angel.
 

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Contents

Section 1
4
Section 2
27
Section 3
50
Section 4
52
Section 5
90
Section 6
136
Section 7
150
Section 8
164
Section 9
219
Section 10
220
Section 11
223
Section 12
244
Section 13
255
Section 14
278
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About the author (2010)

Helen Baldwin, originally from Fort Worth, Texas, currently lives in the rural mountains of North Carolina with her husband, Randy, and their two teenagers, Matthew and Katie, with Jeffrey's spirited presence everywhere. Of course, life would be too sane without two dogs, a cat, whatever lives in the pond, and the wildlife that renders life particularly interesting! They are so enthralled with mountain living in this magnificently inspirational area, they have added a small rental cabin so others can enjoy it, too!

Helen is the daughter of a retired elementary school principal (Elton Derden) and a retired piano teacher (JoAnn). Her brother, Paul, is a physician who has helped form Crossroads, a mobile medical unit for underserved families in the rural crannies of Virginia and who is married to a nurse-turned-professional-volunteer, Jaymie. Randy is a high school teacher and football coach. Not surprisingly, in this family of educators and caring social servants, Helen taught orthopedically and multi-handicapped young students in Columbia, SC, for several years before retiring to 'just' being a mom (and everything else).

Helen has written newsletters for the family's Mountain View Lodge (located on the spectacular Blue Ridge Parkway), occasional letters to the editor(!), and Tips for Making Music Fun & Easy!, a collaborative effort with her mother, JoAnn. This is her first solo book.

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