When Down Is Up: Life with a Down Syndrome Son

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iUniverse, 2005 - Biography & Autobiography - 168 pages
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When Down is Up is the story of John Albert Wilkat, a courageous young man with Down Syndrome and Cerebral Palsy.

He never wanted people to see him as different, even though he did realize, to some extent, that he was. He always wanted to be accepted as "one of the crowd." It was when people were talking about him saying, "John has Down Syndrome," that he would always correct them saying, "I'm not Down Syndrome. I'm UP SYNDROME." And "Up Syndrome" he was, in so very many ways.

From John you could learn that the world is a place of many different people. It is a world where sometimes things are not as they seem, a world where brother turns on brother, and a world where sometimes the smallest gesture can mean everything to another person.

John was a loving, giving, funny, joyful and, for the most part, happy person who was dealt a hand in life that most of us could never imagine. He made the very best of the situation, and John was truly an "UP SYNDROME" young man.

Author Melba Heim Wilkat shares the story of her son's heartbreaking birth, the joys and trials of raising him, and the deafening silence as the door of his life closed.

 

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Contents

THE BEGINNING
1
THEY TOOK UP THE SHIELD
5
THE INFANT YEARS
9
THE JOURNAL
13
PRESCHOOL
23
SUPPORT GROUP
27
HIS DAY ON TV
31
FIRST SCHOOL
33
THE WASHINGTON DC TRIP
79
PROMS
87
OTHER MEMORIES OF SEAGULL
91
GRADUATION
99
AFTER GRADUATION
103
THE HOLIDAYS
111
MORE MEMORIES OF JOHN
117
MARCH 9 2004
129

CARNIVAL DAY AT PARK SCHOOL
39
THE MOVE TO FLORIDA
43
CHANGING SCHOOLS
55
THE SEAGULL SCHOOL YEARS
59
FIELD TRIPS
73
GRIEF COUNSELING
137
THE MUSIC HE LOVED
141
EPILOGUE
145
ABOUT THE AUTHOR
147
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