Porphyria: The Woman who Has "the Vampire Disease"Porphyria is the astonishing true story of a young woman whose physical appearance has led many people to shun her. She must endure days when her complexion turns eerily waxy, visual distortions, abrupt changes of personality and an inability to stand sunlight. It tells of her courageous struggle to live a normal life and find lasting love as well as her frustrating search to find treatment for a disease that one reporter flatly states "not enough people are dying of" to matter. Faced with her worst fear, that her own daughter may have porphyria, Tammy mounts a heroic battle, becoming a national crusader to find the cure for the rare disease. Then the illness becomes national news when the strange malady, afflicting Vietnam and Gulf War veterans, is announced by some noted researchers to be "environmental or intoxicant porphyria." |
Contents
A Semblance of Peace | 5 |
A Homecoming of Sorts | 11 |
The Courage to Stand Alone | 17 |
Copyright | |
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