Adults with Down Syndrome

Front Cover
Siegfried M. Pueschel
Paul H. Brookes Publishing Company, 2006 - Biography & Autobiography - 289 pages
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People with Down syndrome are living longer, fuller lives than ever before --and now for the first time ever, there's a comprehensive, reader-friendly book on the social, clinical, legal, and personal issues they'll navigate in adulthood. Internationally recognized authority Siegfried Pueschel blends contributions from respected experts with first-person essays by adults with Down syndrome themselves. Together, they answer readers'; critical questions about what adults experience and how to support their goals, dreams, choices, and overall well-being. Readers will get research-supported information and practical advice on

  • addressing medical and mental health issues
  • fostering social relationships
  • using person-centered supports to help young adults succeed in college
  • helping people with Down syndrome develop self-esteem and healthy sexuality
  • promoting community employment through methods such as vocational education, transition planning, and supported employment
  • ensuring that adults have choices and control over their living arrangements
  • considering alternatives to guardianship as individuals reach adulthood
  • encouraging healthy living through participation in recreational events

Ideal for sharing with families of individuals with Down syndrome, this book is also an invaluable reference for a wide range of professionals, including educators, clinicians, direct support professionals, transition specialists, and employment specialists. Informative and insightful, this landmark volume will help families and professionals support adults with Down syndrome as they build healthy, satisfying, and independent lives.

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Life Experiences
Positive Behavior Support Process for Adults with

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About the author (2006)

Rose Iovannone, Ph.D., Assistant Professor, Division of Applied Research and Educational Support (DARES), Department of Child & Family Studies, Florida Mental Health Institute, University of South Florida, 13301 Bruce B. Downs Boulevard, MHC 2113A, Tampa, Florida 33612-3899

Dr. Iovannone is currently the director of the Prevent-Teach-Reinforce (PTR) Project. She has also served as the co-principal investigator on a University of South Florida (USF) subcontract for the Professional Development in Autism Project funded by Office of Special Education Programs (OSEP) and Assistant Director for the Center for Autism and Related Disabilities (CARD) at USF. She has published several journal articles and book chapters in the areas of functional assessment, function-based support plans, and positive behavior support and is currently working on numerous manuscripts related to preliminary outcomes of the PTR project. She teaches graduate-level courses on behavioral interventions. As an expert in providing support at the tertiary level, Dr. Iovannone is also a well-respected trainer and consultant. She has extensive experience in working with individuals with autism, learning disabilities, and emotional disabilities. Her principal activities and research interests have been in the areas of functional behavior assessment and positive behavior support, augmentative and alternative communication, and assessment and evaluation.

K. Charlie Lakin, Ph.D., is Director of the Rehabilitation Research and Training Center (RRTC) on Community Living at the University of Minnesota in Minneapolis. Dr. Lakin has more than 25 years of experience in providing services to individuals with intellectual and developmental disabilities as a teacher, researcher, trainer, consultant, and advocate. He is principal investigator of numerous research and/or training centers and projects and has authored or co-authored more than 175 books, monographs, journal articles, book chapters, and technical reports. Dr. Lakin has been a frequent consultant to federal and state agencies on matters of policy, research, and evaluation, including the Administration on Developmental Disabilities, the Health Care Financing Administration, the Assistant Secretary for Planning and Evaluation (U.S. Department of Health and Human Services), the National Center on Health Statistics, the National Institute on Disability and Rehabilitation Research, the Congressional Research Service, the General Accounting Office, and the Centers for Disease Control and Prevention. Dr. Lakin has worked actively as a director or consultant for nonprofit organizations and agencies focused on community services, arts, outdoor recreation and adventure, integrated sports, and advocacy for individuals with disabilities. He has collaborated with universities, private research companies, and foundations in national evaluation and research programs. Dr. Lakin currently is an associate editor of Mental Retardation and an editorial board member of the Journal of The Association for Persons with Severe Handicaps (JASH), the Journal of Intellectual and Developmental Disability, and the Journal of Social Science and Disability. Among the recognitions afforded Dr. Lakin are the Dybwad Humanitarian Award of the American Association on Mental Retardation and an appointment by former President Clinton to the President's Committee on Mental Retardation.

Siegfried M. Pueschel, M.D., Ph.D., J.D., M.P.H., studied medicine in Germany and graduated from the Medical Academy of Düsseldorf in 1960. He then pursued his postgraduate studies at The Children's Hospital in Boston, Massachusetts, and the Montreal Children's Hospital in Quebec, Canada. In 1967, he earned a Master of Public Health degree from the Harvard School of Public Health in Boston, Massachusetts; in 1985, he was awarded a doctoral degree in developmental psychology from the University of Rhode Island in Kingston; and in 1

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