Squint: My Journey with Leprosy

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Univ. Press of Mississippi, 2009 - Medical - 220 pages
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Lying in a hospital bed, Jos P. Ramirez, Jr. (b. 1948) almost lost everything because of a misunderstood disease. When the health department doctor gave him the Handbook for Persons with Leprosy, Ramirez learned his fate. Such a diagnosis in 1968 meant exile and hospitalization in the only leprosarium in the continental United States--Carville, Louisiana, 750 miles from his home in Laredo, Texas. In Squint: My Journey with Leprosy, Ramirez recalls being taken from his family in a hearse and thrown into a world filled with fear. He and his loved ones struggled against the stigma associated with the term "leper" and against beliefs that the disease was a punishment from God, that his illness was highly communicable, and that persons with Hansen's disease had to be banished from their communities. His disease not only meant separation from the girlfriend who would later become his wife, but also a derailment of all life's goals. In his struggle Ramirez overcame barriers both real and imagined and eventually became an international advocate on behalf of persons with disabilities. In Squint, titled for the sliver of a window through which persons with leprosy in medieval times were allowed to view Mass but not participate, Ramirez tells a story of love and perseverance over incredible odds. Jos P. Ramirez, Jr., is a social worker in Houston, Texas. He has written articles about Hansen's disease for the Houston Chronicle, the Star Magazine, the National Association of Social Workers Newsletter, and other publications.

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User Review  - sarahmcb - LibraryThing

This important book not only chronicles one man's journey with the potentially physically disabling Hansen's Disease, but also addresses the collatoral damage done by the fear, prejudice, and ... Read full review


CHAPTER 1 No One Told You?
CHAPTER 2 The Journey
CHAPTER 3 Treatment at Last
CHAPTER 4 Learning about Carville
CHAPTER 5 Life at Carville
CHAPTER 6 Four Months and Counting
CHAPTER 7 First Visit to Laredo
CHAPTER 8 Manhood and Beyond
CHAPTER 10 The Power of Motherly Love
CHAPTER 11 Life after Death
CHAPTER 12 The Road to Advocacy
CHAPTER 13 Change Is Good
CHAPTER 14 Living with a Clean Soul
CHAPTER 15 Commonly Asked Questions

CHAPTER 9 The Magic of Dreaming

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