Squint: My Journey with Leprosy

Front Cover
Univ. Press of Mississippi, 2009 - Medical - 220 pages
0 Reviews
Lying in a hospital bed, Jos P. Ramirez, Jr. (b. 1948) almost lost everything because of a misunderstood disease. When the health department doctor gave him the Handbook for Persons with Leprosy, Ramirez learned his fate. Such a diagnosis in 1968 meant exile and hospitalization in the only leprosarium in the continental United States--Carville, Louisiana, 750 miles from his home in Laredo, Texas. In Squint: My Journey with Leprosy, Ramirez recalls being taken from his family in a hearse and thrown into a world filled with fear. He and his loved ones struggled against the stigma associated with the term "leper" and against beliefs that the disease was a punishment from God, that his illness was highly communicable, and that persons with Hansen's disease had to be banished from their communities. His disease not only meant separation from the girlfriend who would later become his wife, but also a derailment of all life's goals. In his struggle Ramirez overcame barriers both real and imagined and eventually became an international advocate on behalf of persons with disabilities. In Squint, titled for the sliver of a window through which persons with leprosy in medieval times were allowed to view Mass but not participate, Ramirez tells a story of love and perseverance over incredible odds. Jos P. Ramirez, Jr., is a social worker in Houston, Texas. He has written articles about Hansen's disease for the Houston Chronicle, the Star Magazine, the National Association of Social Workers Newsletter, and other publications.
 

What people are saying - Write a review

We haven't found any reviews in the usual places.

Contents

CHAPTER 1 No One Told You?
1
CHAPTER 2 The Journey
27
CHAPTER 3 Treatment at Last
38
CHAPTER 4 Learning about Carville
48
CHAPTER 5 Life at Carville
55
CHAPTER 6 Four Months and Counting
69
CHAPTER 7 First Visit to Laredo
88
CHAPTER 8 Manhood and Beyond
100
CHAPTER 10 The Power of Motherly Love
138
CHAPTER 11 Life after Death
156
CHAPTER 12 The Road to Advocacy
164
CHAPTER 13 Change Is Good
178
CHAPTER 14 Living with a Clean Soul
193
CHAPTER 15 Commonly Asked Questions
207
Notes
215
Bibliography
219

CHAPTER 9 The Magic of Dreaming
128

Other editions - View all

Common terms and phrases

Bibliographic information