When Treatment Fails: How Medicine Cares for Dying Children

Front Cover
Oxford University Press, 2006 - Medical - 289 pages
0 Reviews
Medical care of the terminally ill is one of the most emotionally fraught and controversial issues before the public today. As medicine advances and technologies develop, end-of-life care becomes more individualized and uncertain, guided less by science and more by values and beliefs. The crux of the controversy is when to withhold or withdraw curative treatments--when is enough, enough?
Political debates rage about when treatment is no longer effective; difficult cases are contested in courts; and the media devour the most sensational aspects of end-of-life care. In all this excitement and controversy, what is sadly overlooked is the extreme pressure that care of the terminally ill puts on medical staff as they deal with patients and their families and make life-or-death decisions. That pressure--the psychological strain and continuing uncertainties--is magnified when the patients are children.
David Bearison looks at this controversial issue from the perspective of the medical staff caring for dying children. Not just doctors, but nurses and counselors as well. By capturing their stories--as no other book has, Bearison is able to move beyond broad, abstract ideas about end-of-life care to convey the situated contexts of such care, including the complications, disagreements, frustrations, confusions, and unexpected setbacks.
In addition to a discussion of questions surrounding whether to withhold or withdraw curative treatments, When Treatment Fails explores the crucial concerns of those medical practitioners who care for dying children: education and training, relation with one another, communicating with patients and families, and finally, coping and moving on. Ultimately, the threads connecting these themes are the great costs and rewards of this difficult work, and the lessons that can be drawn from the nitty-gritty experiences of medical practitioners who struggle to find the balance between trying to defeat death and trying to provide comfort.

What people are saying - Write a review

We haven't found any reviews in the usual places.


Pediatric EndofLife Care
Narrative Theory Medicine and Methods
Twenty Stories About How Children Die
Withholding and Withdrawing Curative Treatments
Pain and Suffering
Staff Reacting
Patients and Families Reacting

Other editions - View all

Common terms and phrases

Popular passages

Page 278 - Permission means the agreement of parent(s) or guardian to the participation of their child or ward in research. (d) Parent means a child's biological or adoptive parent. (e) Guardian...
Page 280 - Patient-controlled analgesia in children and adolescents: A randomized, prospective comparison with intramuscular administration of morphine for postoperative analgesia.

References to this book

About the author (2006)

David J. Bearison's many positions include Professor of Developmental Psychology at the Graduate Center of the City University of New York, Adjunct Professor of Medical Psychology in Pediatrics and Psychiatry at the College of Physician and Surgeons of Columbia University, and Attending at the Children's Hospital of New York (CHONY), Columbia Presbyterian Medical Center. He is a member of the American Psychological Association's Task Force on End-of-Life Issues for Children and Adolescents. He lives with his wife, a pediatric oncologist, in New York City and Croton on Hudson, NY.

Bibliographic information