Life as We Know it: A Father, a Family, and an Exceptional Child

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Pantheon Books, 1996 - Family & Relationships - 284 pages
2 Reviews
When James Berube was born in 1991 his parents knew little about Down syndrome other than that it would render their child "disabled". As they sought to understand exactly what this would mean, they learned not only about the current medical and social treatment of developmental disabilities, but also about the history of how society has understood - and failed to understand - children like James. In telling the story of his son's development during the crucial first four years of life - learning to walk and talk, to move into the world and the lives of those around him - Michael Berube engages the charged issues that each stage of James's growth leads into: I.Q. testing, the politics of education, disability law, social services, health care, and entitlements. Framing these issues is the larger debate, which Berube brilliantly illuminates, over concepts such as social justice, what it means to be human, and, ultimately, what kind of society we value and by what means we determine it. James's story is at the heart of this debate.

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User Review  - yukon92 - LibraryThing

This book about the early life of a child with Down Syndrome would receive more stars, if the author didn't turn on his "professor" mode and have to write page after page of scholarly discourse! Read full review

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User Review  - karl.steel - LibraryThing

Seems that most of my reviews respond to other reviews.... Currently, the only other review for this book refers to it as prone to "ranting, pontificating or just being condescending." Clearly the ... Read full review


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About the author (1996)

Michael Berube is a professor of English at the University of Illinois at Champaign-Urbana, and in 1994 was named University Scholar. He is the author of three other books, and has written for many academic journals a Village Voice.

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