Cerebral Palsy: A Complete Guide for Caregiving

Front Cover
JHU Press, May 30, 2017 - Health & Fitness - 496 pages

When their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being. For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows.

The new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classification system and the Functional Mobility System, are described and explained. And a number of emerging therapiesā€”including marijuana oil, cord blood transfusion, deep brain stimulation, epilepsy surgery, and growing spinal rodsā€”are explored.

Intended for parents, grandparents, teachers, therapists, and others who care for and about people with cerebral palsy and cerebral palsylike conditions, this is an essential and compassionate guide.

Key Features:

• Detailed descriptions of specific patterns of involvement (hemiplegia, diplegia, quadriplegia)
• Explanations of the medical and psychosocial implications of CP
• Photographs and drawings that complement the text
• Practical advice about caregiving, from nutrition to mobility
• An illustrated encyclopedia that defines and describes terms, diagnoses, medical and surgical procedures, and orthopedic and other assistive devices
• Lists of resources and recommended reading, which include a number of online sources

 

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Contents

Foreword by Joan Lenett Whinston
An Overview of Early Child Development
Medical Problems Associated with Cerebral Palsy
Intellectual Psychological and Social Development
Hemiplegia
Diplegia
Quadriplegia
Choosing a Stander
How the Health Care System Works
Financing Care for the Child with Cerebral Palsy
Using the Legal System
About Walkers and Gait Trainers
Keeping Medical History Records
Managing Tube Feedings
Resources
Copyright

The Adult with Cerebral Palsy

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About the author (2017)

Freeman Miller, MD, and Steven J. Bachrach, MD, are the co-directors of the Cerebral Palsy Program at Nemours / Alfred I. duPont Hospital for Children in Wilmington, Delaware. Dr. Miller is an assistant professor of orthopaedic surgery at Thomas Jefferson University’s Sidney Kimmel School of Medicine in Philadelphia and an affiliated associate professor of kinesiology and mechanical engineering at the University of Delaware. Dr. Bachrach is a professor of pediatrics at the Sidney Kimmel School of Medicine and the medical director at Philadelphia’s HMS School for Children with Cerebral Palsy.

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