Policy, Program Evaluation, and Research in Disability: Community Support for All

Julie Ann Racino

Psychology Press, 1999 - Family & Relationships - 473 pages

Explore case studies from the 1980s and 1990s that highlight the progress of community programs for people with disabilities!

Policy, Program Evaluation, and Research in Disability: Community Support for All is an essential research reference on how community support systems can greatly assist people with diverse disabilities to live fuller lives outside of institutions. Based on qualitative research methods, Policy, Program Evaluation, and Research in Disability reflects over a decade of technical assistance and research in state, regional, and local communities throughout the United States. Community service managers, policy makers, researchers, activists, individuals with disabilities, and their families will benefit from the numerous studies that promote a better quality of life for those living with disabilities.

Structured around the support and empowerment paradigm, which strives to enhance the independence of people with disabilities, Policy, Program Evaluation, and Research in Disability offers studies that combine in-depth, qualitative research approaches for use with field practicums, research internships, and professional development. You will examine studies that cover several different types of community support systems, in the fields of mental health, mental retardation, brain injury, physical and multiple disabilities.

In Policy, Program Evaluation, and Research in Disability, some of the topics you will read about include:

• public policies to support changes in communities and governmental programs
• advocating for statewide changes in housing andcommunity support programs
• national, regional, and local studies of organizations and innovations supporting people with disabilities
• working for the inclusion of individuals with disabilities in public schools and communities
• agencies as supporters and funders of personal choice, self-advocacy, and services to families
• case studies on community integration that show people with disabilities living successful lives
• personal assistance services as described by leading consumer experts and advocates
• maximizing the personal futures of people with disabilities through supported employment, housing and community livingWith Policy, Program Evaluation, and Research in Disability, you will gain an in-depth look at the programs and policies available to people with disabilities and the emerging trends, directions, and recommendations for these programs. An excellent guide and research tool, this book challenges you to reach to another level of advocacy and not to settle for the status quo when it comes to bringing interdependence to everyone.
  
  

Contents

• The New Hampshire StoryLessons: 25
• Community: 31
• The Role of the Courts: 53
• Key Factors Contributing to Positive Outcomes: 59
• Litigation Institutional Closures and Community: 69
• Knitting and Connecting: 79
• A Qualitative Study of SelfAdvocacy: 85
• The Development of SelfAdvocacy in New Hampshire: 91
• New Hampshires Guardianship Program: 97
• Local Control: 101
• Conclusion: 117
• Community Places and Relationships: 125
• Ways of Organizing to Provide Support: 132
• MOVING TOWARD UNIVERSAL ACCESS: 139
• Combined Physical and Cognitive Disabilities: 146
• Psychiatric Survivors the International: 153
• Tasks and Roles of Personal Assistants: 160
• Decision Making and Consumer Control: 166
• Universal Access to PAS: 173
• Support and Decision Making: 179
• Conclusion: 187
• Perspectives: 207
• The Meaning of Cognitive and Emotional Support: 213
• Practical Aspects of Personal Assistance Services: 221
• Introduction: 227
• The Role of Family Case Study Research: 235
• The Role of Family Case Studies in Evaluation Research: 254
• Conclusion: 261
• Introduction: 270
• Residential Reform and Deinstitutionalization: 276
• Housing Neighborhoods and Communities: 284
• Introduction: 297
• Foster Care Models in the United States: 303
• Quality of Homes and the Safety of Children: 313
• Introduction: 319
• Toward Better Futures: 335
• Nature of Qualitative Evaluation Research: 346
• Data Collection: 352
• Selection of Agencies: 358
• Report References: 364
• Bibliography: 367
• 319: 403
• Organizations Departments and Associations Index: 437
• 303: 438
• Subject Index: 443
• 311: 447
• 314: 455

About the author

Julie Ann Racino, MAPA, is Principal and President of Community and Policy Studies in Rome, New York. She has served as Associate and Deputy Director of the National Research and Training Center and its related national, state, and local projects at the Center on Human Policy at Syracuse University. Ms. Racino was selected for Who's Who of Women in the World and has over twenty years of experience in the policy, management, research, and development of community services. She is lead editor and primary author of the book Housing, Support and Community, and she has written over 100 articles in the areas of social policy and disability, organizational studies, and community services. Ms. Racino is a graduate of Cornell University and the Maxwell School of International and Public Affairs at Syracuse University. She has taught at the undergraduate and graduate levels at the Syracuse University School of Education and in the psychology department at The State University of New York at Oswego, and has lectured throughout the United States and the United Kingdom on public policy, community integration, and disability.

Bibliographic information

• Title: Policy, Program Evaluation, and Research in Disability: Community Support for All; Cahiers de L'Universite Du Quebec, C-31; Haworth health and social policy
• Author: Julie Ann Racino
• Edition: illustrated, annotated
• Publisher: Psychology Press, 1999
• ISBN: 0789005972, 9780789005977
• Length: 473 pages
• Subjects: Family & Relationships / Child Development; Family & Relationships / General; Health & Fitness / Physical Impairments; Medical / Home Care; Medical / Physical Medicine & Rehabilitation; Medical / Public Health; Political Science / Public Policy / Social Services & Welfare; Psychology / Mental Health; Psychology / Psychotherapy / General; Social Science / General; Social Science / Social Work